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Stories by Month Posted
July 2007
Jason G: Morphea I went to see a rheumatologist, who unfortunately originally told me that morphea has been known to lead to systemic sclerosis. Obviously, he was wrong about this, and later admitted that he spoke too soon...
Stephanie L: Morphea I have also had numbness in my arms, legs and face for the past two months. The doctors do not believe they are related to each other, but it does seem strange that it happened within the same year...
Vivian: Morphea Truth is that for now my health hasn't been too effected, but emotionally it becomes quite hard...
(Español/Spanish) Vivian: Morfea La verdad es que por ahora no me ha afectado en mi salud pero sí emocionalmente pues es difícil...
Myle: Morphea I went to a dermatologist, who at first told me it was some type of fungus and treated me accordingly. But the spot kept on growing and changing in colour and aspect...
(Español/Spanish) Myle: Esclerodermia Morfea Fui con un dermatólogo que en principio me dijo que era un hongo, y me envió un tratamiento para los hongos, pero la mancha seguía creciendo, y cambiando de color y aspecto...
Susie L: Raynaud's (and Scleroderma, too?) I have been told that I "probably" have scleroderma in the early stages by one doctor, that it is unlikely by another, and that I almost certainly do have it by yet another...
Andrea H: Mother of Son with Facial Morphea I am the mother of a six year old boy called Alex who is suffering from facial scleroderma...
Jane D: Linear Morphea (En Coup de Sabre) In August 2006, I found another dent in my head, but this one was deeper and longer and just to the left of the first one...
Joe Joe: Morphea Because such a large area of my body is attacked my doctors believe that my internal organs are also affected...
Alegria: Fibromyalgia (Israel) My hands, legs and shoulders hurt in a very distinctive manner; my fingers are paralyzed with pain, and sometimes I get strong headaches...
(Español/Spanish) Alegria: Fibromialgia Me duelen las manos, las piernas, los hombros, de maner extraña; los dedos se me paralizan del dolor, y en ocasiones me duele la cabeza...
Yuri: CREST Syndrome Now, one month before my nineteenth birthday, I live with CREST Syndrome, rheumatoid arthritis, acid reflux and anemia...
New Personal Stories
Alana: Scleroderma (Peru) I cannot open my mouth completely, I have lost strength in my hands, I have breathing problems, my face looks different, my skin is really tight and I have lost my appetite...
(Español/Spanish) Alana: Paciente Nuevo con Esclerodermia (Peru) Le dije que ya no podía abrir la boca completamente, he perdido la fuerza de las manos, tengo problemas respiratorios, mi rosto está diferente, mi piel está dura y he perdido casi el apetito...
Kristy C: Generalized Morphea The only place where I do not have any morphea is my face, which I am very thankful for...
(Update) Raymond: Surviving Son of Scleroderma Patient On October 19th, the Herbert family lost another member of the family to scleroderma. My uncle Edmond has passed on...
Sharon H: Scleroderma/Morphea It has been thirty-two years living with this and it has progressively gotten much worse and has spread...
Teena: En Coup De Sabre My mother and I went to Johns Hopkins Hospital. They did what was called 'Grand Rounds' where about fifty doctors were looking at me taking pictures and videotaping me...
More New Stories: November 2008
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Go to New Patient Stories: June 2007
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