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August 2007
Jon T: Eosinophilic Fasciitis I am stumped as to the possibility for me to return to normal duties at work, and what the normal prognosis for someone with this disease can expect?
Barbara H: Generalized Essential Telangiectasia About five years ago some specialists at St, Vincents Hospital had a symposium and I was one of the subjects but they did not have anything to assist me. Laser could help but was very expensive...
Ginger: Generalized/Linear Scleroderma After analyzing all the test results and my medical records the neurologist attributed the muscle atrophy to the linear scleroderma...
Mark: Systemic Scleroderma It wasn't until 2003 when I finally saw a doctor. They told me I had scleroderma and that I would live maybe five years...
Phyllis C: Scleroderma How many new cases are coming up now from people that were at the World Trade Center? I was there along with co-workers that are very ill now...
Laura H: Mother of Son with Linear Morphea What started as a bruise in his forehead, has come down to his nose, and his forehead has sunk a bit...
(Español/Spanish) Laura H.: Morfea Lineal Al principio no le dí mucha importancia porque pasaba el tiempo y seguía igual, pero ahora pasado un año todo ha cambiado...
Lindsey Z: Morphea Scleroderma I was self conscious in fear that others would care, or find me ugly because of it...
(Update) Laurie (Bioteach): CREST Syndrome I suffered a severe depression including hospitalization and electro-convulsive therapy...
Georgina: Mother of Child with Morphea The only thing I know about it is what her doctor told me, namely that it has no cure...
(Español/Spanish) Georgina: Madre de Paciente con Morfea Lo único que sé es que es una enfermedad incurable, por que es lo único que me explico su doctor...
Caroll: Morphea I would like to know from someone who has children, as to whether my daughter can develop the same thing...
(Español/Spanish) Caroll: Morfea No se si alguien tenga hijos porque me preocupa demasiado saber que mi hija pueda desarrollar lo mismo...
New Personal Stories
Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end...
(Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia...
(Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was...
Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information...
More New Stories: August-November 2009
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Go to New Patient Stories: July 2007
 
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