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| Patient & Caregiver Stories Main Menu |
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| September 2007 | | Carlos S: Son of Father with Diffuse Systemic Sclerosis (Diffuse Scleroderma) My father is a simple man, he works the land, and does not have a great degree of schooling, but if there is something he has been taught is to never give up... | | (Español/Spanish) Carlos S: Hijo- Sistémica Difusa Mi papá es un hombre simple, del campo, no tiene muchos estudios, pero si hay algo que a él no le enseñaron fue a desistir... | | Tore: Linear Scleroderma However, as time went by, the patch extended, and the hardening, instead of going down, got worse, involving more and more parts of my leg, all the way to my knee... | | (Italiano) Tore: Lineare La cute ma anche i tessuti sottocutanei risultavano induriti. In realtà sembrava che la pelle si fosse completamente attaccata all'osso, dal quale era impossibile smuoverla... | |
| Alana: Scleroderma (Peru) I cannot open my mouth completely, I have lost strength in my hands, I have breathing problems, my face looks different, my skin is really tight and I have lost my appetite... |
| (Español/Spanish) Alana: Paciente Nuevo con Esclerodermia (Peru) Le dije que ya no podía abrir la boca completamente, he perdido la fuerza de las manos, tengo problemas respiratorios, mi rosto está diferente, mi piel está dura y he perdido casi el apetito... |
| Kristy C: Generalized Morphea The only place where I do not have any morphea is my face, which I am very thankful for... |
| (Update) Raymond: Surviving Son of Scleroderma Patient On October 19th, the Herbert family lost another member of the family to scleroderma. My uncle Edmond has passed on... |
| Sharon H: Scleroderma/Morphea It has been thirty-two years living with this and it has progressively gotten
much worse and has spread... |
| Teena: En Coup De Sabre My mother and I went to Johns Hopkins Hospital. They did what was called 'Grand Rounds' where about fifty doctors were looking at me taking pictures and videotaping me... |
| More New Stories: November 2008 |
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| Go to New Patient Stories: August 2007 |
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