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Stories by Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms
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Stories by Month Posted
January 2008
Joanna: Morphea The first dermatologist said I had more spots than he could find on any one person in his medical books and treated me with a steroid tape that I had to cut into the shape of each spot on a daily basis...
(Update) Kathy Baker: CREST - Systemic Scleroderma Two weeks later I was back in surgery where he amputated the entire index finger...
Mary L: Morphea My mom had the department of child services call on her because someone said I was all "bruised". I was denied enlistment into the United States Army because of this disease...
Anita G: Localized Scleroderma This all started as a small spot that I thought was insignificant, but as time went on, it grew, along with my symptoms...
(Español/Spanish) Anita G: Esclerodermia Localizada También comencé con una manchita que creí insignificante pero con el tiempo se extendió, y se fueron agravando los síntomas...
Terri: Subcutaneous Morphea I was finally diagnosed with deep morphea (or subcutaneous morphea) around mid February 2007, after having a biopsy...
Kym P: Morphea It started almost seven years ago, when I developed an odd looking bruise about the size of a quarter on my shin. The next couple of years it slowly changed...
Robin T: CREST Syndrome My hands were always cold and turning white, purple then red then back to normal, and hurting. Then I developed a sore on my finger tip that wouldn't go away...
Marion: Friend of Systemic Scleroderma Patient Bridget was diagnosed about seven years ago with systemic scleroderma with signs of stiffness in parts of her body and taut skin, mainly on her hands, arms and face...
(Update) Natasha Lubin: Thelma & Louise of the Geriatric Set No, we didn't go over a cliff...
Rubie: Linear Morphea Scleroderma I was referred to a dermatologist and was finally diagnosed with linear morphea at the age of four...
(Update) Donna C: UCTD I started shots of methotrexate and finally got this disease under some control...
(Update) Marian: Watermelon Stomach Since posting my story here, people have been writing to me about watermelon stomach or GAVE...
(Update) Jon T: Eosinophilic Fasciitis The disease has spread throughout my entire body, making getting out of a chair, bed, or doing just about anything, very difficult...
Stacie: Linear Scleroderma I may have been incurable at four years old but it gave me an insight. I appreciate my life so much more than I would have thought. It could be worse...
New Personal Stories
Nina: Fibromyalgia, Raynaud's, Limited Scleroderma/CREST That is when I found ISN! The volume of reliable, informative, trusted information that I found on this site completely overwhelmed me...
Wade: Scleredema vs Scleroderma At first look, my doctor thought I might have scleroderma, but after doing blood work, they said my tests came back negative...
Mendyon: Mother-in-Law of CREST Patient Unfortunately, as I sit here writing this letter my husband and I are faced with some grim circumstances. She is currently losing her battle to CREST syndrome...
Rhonda L: Systemic Scleroderma I have recently been diagnosed with sclerodema, and am still trying to wrap my brain around this...
Joan B: Scleroderma and Raynaud's One day in 2000, I was raking leaves and my hands were really cold. I went into the house in pain and my hands looked like I had frostbite...
(Update) Donna: CREST, Raynaud's, possible Fibromyalgia It is now one and a half weeks since I had the iloprost infusion and I am very happy to say that my pain has gone in my hands...
Alina: Scleroderma CREST Syndrome This site is very helpful as I have been reading articles of people with my condition and can relate to what they are going through...
Star S: Morphea and Systemic Scleroderma I was diagnosed with morphea at age seven. Now at age thirty-three, I have recently developed systemic scleroderma with gastrointestinal manifestations, Sjogren's syndrome, inflammatory arthritis, malabsorption...
Merry: Deep Morphea They diagnosed it as localized morphea however they did not treat or elaborate...
More New Stories: October 2008
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