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Stories by Month Posted
March 2009
Donna C: Undifferentiated Connective Tissue Disease (UCTD) For the most part I have still been doing very good. Some little setbacks here and there but for the most part much better...
Julie T: Surviving Daughter of a Diffuse Scleroderma Patient Our family deals with most difficult situations with laughter and humor, even in the most trying times...
Donato: Systemic Scleroderma with Raynaud's (Italy) At the beginning I didn't know what it was, but afterwards I got informed and I realized how serious it was...
(Italiano) Donato: Sclerosi Sistemica con Fenomeno di Raynaud (Italy) Mi sono rivolto ad un centro specializzato del policlinico di Bari e in seguito a vari controlli mi hanno diagnosticato questa malattia...
Isabo: Raynaud's and Systemic Sclerosis (Italy) About a year ago I got diagnosed with Raynaud's, since the tip of my fingers had withered...
(Italiano) Isabo: Fenomeno di Raynaud e Sclerosi Sistemica (Italia) Circa 1 anni fa mi hanno riscontrato il Fenomeno di Raynaud in quanto mi erano marcite non completamente le estremita delle dita...
Santolupo: Diffuse Scleroderma (Italy) In the exams her illness appears to be halted, but about a month ago she started having stomach problems...
(Italiano) Santolupo: Sclerodermia Diffusa (Italia) Da 1 mesetto a problemi allo stomaco non ci capiamo piú niente, siamo tutti male per questa cosa, non viviamo piú tranquili...
Dawn M: Linear/Systemic Scleroderma My family and I were informed by the doctors, that the localized/linear form of scleroderma that I was diagnosed with, would never progress into the potentially fatal, systemic form...
(Update) Bill Birtch: Diffuse Scleroderma This past summer I took on the shared responsibility of heading up the local chapter of the Scleroderma Society of Ontario...
Sheila Z: Scleroderma I would like to first say that this site has been a great help for me to understand what is happening to my body and my life...
Edith: MCTD with En Coup de Sabre/Parry Romberg's, Lichen Sclerosus, Rheumatoid Arthritis, Sjogren's My GP is fabulous, but at the end of the day it is not enough. I would be lost without people like you...
Laira: MCTD, Scleroderma, SLE, Lupus, CREST, Lymphoma I was just seventeen when I was told I had rheumatoid arthritis...
Simo S: Raynaud's (Italy) Hello, I am a twenty-nine year old girl who was diagnosed with Raynaud's about ten years ago...
(Italiano) Simo: Sindrome di Raynaud (Italy) Salve, sono una ragazza di 29 anni cui fu diagnosticata la Sindrome di Raynaud circa 10 anni fa...
Clod: Raynaud's Syndrome (Italy) Since I was thirteen I have always suffered from the cold, so much so that my hands and my feet became purple in the true sense of the word, afterwards white and later red...
(Italiano) Clod: Syndrome Raynaud (Italia) Dall'etá di tredici anni ho sempre sofferto il freddo a tal punto che mani e piedi diventavano viola nel vero senso della parola, poi bianche e infine rosse...
Janet Q: UTCD or MCTD I also experienced new symptoms; joint pain, muscle aches, headaches, very painful carpal tunnel syndrome in both hands, back and neck pain, the list grew on and on...
Suzy G: GAVE (Watermelon Stomach) and Primary Biliary Cirrhosis Just over six years ago I was diagnosed with primary biliary cirrhosis (PBC), a liver disease. Since then everything else seems to be happening to my body...
New Personal Stories
Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end...
(Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia...
(Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was...
Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information...
More New Stories: August-November 2009
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Go to New Patient Stories: January 2009
 
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