| Stories by Month Posted |
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2009: Jan-Feb Mar-Apr May Jun Jul Aug-Nov 2008: Jan Feb-Sep Oct Nov-Dec 2007: Jan-May Jun Jul Aug Sep Oct-Dec 2006: Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov-Dec 2005: Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec 2004: Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec 2003: Jan -Apr May Jun Jul Aug Sep Oct Nov Dec 2002: Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec 2001, 2000, 1999 |
| July 2009 |
| Missie R: Mixed Connective Tissue Disease I finally asked for an ANA test to check for lupus. My family doctor hesitated because my symptoms were all over the board... |
| (Update) Amanda: Diffuse Systemic Sclerosis (U.K.) I have been asked to speak about handling adversity, apparently I do it well. Any sclerodermian could do this because we know adversity by name and continue to overcome it in style... |
| Debs B: Diffuse Systemic Sclerosis (England) This seems to be a long list of ailments that I have been coping with for years, so the addition of diffuse systemic sclerosis did not really panic me... |
| Alex U: Swollen Salivary Gland (Italy) I have spent many months with the swelling on the left side of my face, even my ears, and I think I am developing osteoarthritis... |
| (Italiano) Alex U: Ghindola Salivare Allungata (Italia) Inoltre ho passato molti messi con la parte sinistra gonfia: l’ orecchie, niente il menisco infiammato con una piccola artrosi... |
| Marina O: Lichen Planus (Italy) I have visited at least six and each one has given me their own therapy, mostly experimental treatments and none of them really useful... |
| (Italiano) Marina O: Lichen Planus (Italia) Purtroppo io non ho piú fiduccia nei medici, ne ho visitato almeno 6 e ognuno mi ha datto la sua terapia... |
| Luca: Difficult Diagnosis, Incomplete (Italy) These are my symptoms: joint pain, bone pain, fever, the inside of my mouth is irritated, as if I had burned it... |
| (Italiano) Luca: Dificulta Diagnosa Incompleta (Italia) Ma io stó davvero male e non so piú che fare, vivo davvero male. Addirittura mi hanno detto che sono sintomi immaginari, ma non é cosí... |
| Antonellina: Lupus (Italy) I am forty-eight, and eight years ago I was diagnosed with lupus... |
| (Italiano) Antonellina: Lupus (Italia) Ho 48 anni, e otto anni fa mi hanno diagnosticato il lupus... |
| Dodo: Limited Systemic Scleroderma (Italy) The tips of my fingers turned cold, and then became cyanotic, always hurt and in the end they became ulcerated... |
| (Italiano) Dodo: Sclerodermia Sistemica Limitata (Italia) Ho iniziato ad avere alcune punte delle dita delle mani molto fredde, che in pochi giorni diventarono prima cianotiche, sempre piú doloranti e infine presentarono delle ulcere... |
| Pieranna: Daughter of Mother with Sjögren's Syndrome (Italy) My mother was just recently diagnosed with Sjögren's Syndrome, after years of joint pain and dry mouth... |
| (Italiano) Pieranna: Sindrome di Sjogren (Italia) Ieri la mia madre é stata diagnosticata con il Sindrome di Sjögren, dopo anni di dolori alle articolazioni e secchezza orale... |
| Katia C: Sister of a Scleroderma Patient (Italy) She is in the acute phase of the illness, and she has a hardened skin, third degree, that has affected her hands, arms, chest and legs... |
| (Italiano) Katia: Fenomeno di Raynaud con Sclerodermia Diffusa (Italia) In conseguenza ha una crisi renale sclerodermica che gli ha alzato la presione e gli ha provocato una ischemia... |
| Penelope: CREST Scleroderma (Italy) I was tired, my joints ached, and my hands turned different colors... |
| (Italiano) Penelope: Sclerodermia CREST (Italia) Stanchezza,dolori alle articolazioni e variazioni di colore alle mani... |
| Nathalia: Progressive Systemic Scleroderma (Uruguay) As the years went by I began to become more conscious of how complex this illness is... |
| (Español/Spanish) Nathalia: Esclerodermia Sistemica Progresiva (Uruguay) Hay dias que me levanto con muchos dolores o que les preparo el desayuno a mis hijos y se me caen las cosas porque se me ponen muy rigidas las manos... |
| (Update) Valentina: Morphea (Italy) Ciao a tutti, sono una ragazza di 29 anni e da quasi 9 sono affetta da Morphea... |
| Ely E: Linear Scleroderma (Italy) She took me to the dermatologist who discovered another spot that ran through my left leg from the stomach towards the back... |
| (Italiano) Ely E: Sclerodermia Lineare (Italia) Cioé che mi sarebbe rimasta la macchia piú scura ma che non mi avrebbe provocato altri probleme in teoria... |
| Nikhath: Linear Scleroderma (India) I hide my hands from everyone and because of this behavior of mine, people assume that I am shy... |
| Dorne: Overlap and Possibly CREST Since 2002 I have been diagnosed with Lupus, Sjogren's Disease, B12 deficiency, mild pulmonary hypertension, Celiac disease, Type II diabetes and now the specialists are seriously talking about CREST... |