| Amber: Morphea with Possible Systemic Sclerosis | |||||||||||
| I was convinced he was no expert on the matter and sought out another doctor as the morphea continued to spread. | |||||||||||
I went to the dermatologist and he quickly diagnosed it as morphea. He told me it was related to scleroderma and would go away on its own without any intervention. Unfortunately, I watch Lifetime frequently so I knew about systemic scleroderma, and I was shocked and scared. He reassured me that although it is related, it would never turn systemic. After a couple more visits with him, I was convinced he was no expert on the matter and sought out another doctor as the morphea continued to spread. The doctor I now see has treated hundreds of patients with morphea and has claimed to see some patients' morphea turn systemic. This scares me to death because recently I have noticed several odd things going on. In early February 2002, I began to have sharp, shooting pains that originate in my lower back and go down into my legs. My lower back was horribly sore, and it was difficult to sleep at night. In addition to the shooting pain, my muscles were sore in the back and sides of my legs. About two weeks later, I noticed a tremendous and visible decrease in the amount of cellulite on the backs of my thighs, despite no change in my eating or exercise habits. I attributed this to skin thickening. I also noticed a burning sensation in the backs of my legs. To date, the back of my right leg is still sore. The skin on my upper arms is not horribly sore, just a little sore to the touch. I have also begun to have pains in my ankles and forearms that seem to be in the bone. My legs, fingers, and feet often itch. And I am terribly tired all the time. I called my dermatologist today to inform him of these changes. He wants me to come in next Monday and is very concerned. I wonder if I am the only person with morphea experiencing these other things. I also wonder if anyone with progressive systemic sclerosis started out with a diagnosis of morphea. Please contact me if any of this sounds familiar. | |||||||||||
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