Patient & Caregiver Stories Main Menu
(English) Stories by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z
All Stories by Date Posted: 1999 2000 2001 2002 2003 2004 2005 2006 2007 2008
Stories by Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms
Stories by Language: French | German | Greek | Italian | Polish | Romanian | Russian | Spanish | Turkish
Anastasia: Surviving Granddaughter of a Diffuse Scleroderma Patient
Bye Bye GiaGia

Antiques Photo by Shelley EnszJust last February my grandmother who never seemed to get sick was brought to the hospital. I remember her constantly tired and her small body was always in pain. She suddenly could not walk. That was the beginning of a long fight with my dear grandmama.

We went everywhere to figure out what she had but no one knew. Traveling to a different hospital finally we heard scleroderma. Honestly I would never heard of this disease. I thought that she would get treatment and come back home. Though, little did I know, that my life as well as the rest of my family's would change forever.

She immediately had kidney and heart problems, and she was fed by a tube in her stomach. We all had hope, and the doctors assured us she would live but that it would be a hard life for her. I knew that she could never get back to the way she was, healthy.

Sad to say that my grandmother died nine months after they diagnosed her. My question is if she might have had this disease many years ago since she died so fast? Was this just the last stage? It progressed so fast. Are there many cases like this?

Thank you for listening.

Bye Bye GiaGia.

To Contact The Author
Anastasia
New email needed 09-06-06 SLE
Old Email: GrkACE@aol.com
Posted 10-24-99 SLE
LINKS
Diffuse Scleroderma
Heart Involvement
Kidney Involvement
Survivor's Stories
Tubal Feeding
What is Scleroderma?
 
New Personal Stories
Donna: CREST, Raynaud's, possible Fibromyalgia I was diagnosed with CREST (Limited Systemic Scleroderma) by a rheumatologist in 2006. This wasn't really a surprise to me as my mother was diagnosed with diffuse scleroderma in 1998...
Jessica G: Parry-Romberg Syndrome By the time I was about five years old, the disease had already disfigured my left side drastically. I have had over fifty operations and surgical procedures for Romberg's....
Leslie R: Scleroderma, Vitiligo, Lupus, Anemia, Hypertension and Type 2 Diabetes He told me that I have scleroderma and explained what this disease is about. After suffering so long I finally got some answers...
More New Stories: Feb-August 2008
Submit Your Patient, Caregiver or Survivor Story in:
Arabic  | Dutch  | English  | Español  | Deutsche (German)
Italiano  | Kannada  | Polski  | Russian  | Spanish  | Turkish  | Other Languages
We will edit your story, create original artwork to decorate it, prepare it for the web, and post it on this site. Just fill out our simple Story Submission Form for your story, updates, or email address changes.
Keep on Surfing!
Go to Andie Friend: Morphea
Contact ISN. We are a full-service nonprofit agency.
Email: isn@sclero.org or
or post a message in our Sclero Forums !
Shop, Join or Donate Now
(Also see: Contact ISN )
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702
USA
Toll Free Hotline in U.S. 1-800-564-7099
Direct Line 952-831-3091 (U.S.)
(We are also known as the Scleroderma from A to Z web site.)
© Copyright 1998-2008 International Scleroderma Network
All Rights Reserved