Patient & Caregiver Stories Main Menu
(English) Stories by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z
All Stories by Date Posted: 1999 2000 2001 2002 2003 2004 2005 2006 2007 2008
Stories by Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms
Stories by Language: French | German | Greek | Italian | Polish | Romanian | Russian | Spanish | Turkish
Andie Friend: Morphea Scleroderma
Normally blessed with excellent skin, I truly believed it would get better
and that the discoloration would go away.

Autumn Colors for Andie Friend by Shelley Ensz I want to share my story of morphea scleroderma, which spans nearly eighteen years now.

After a traumatic experience in my first year of college, during which I saw a dear friend drown, and another drown trying to rescue him, I returned home with a small, white patch on my back. The patch did not itch and slowly grew to about an inch long over the course of a year.

Normally blessed with excellent skin, I truly believed it would get better and that the discoloration would go away. It did not. It grew harder and would mildly itch. I was fairly careless and carefree at that time, so when a skin specialist diagnosed me with scleroderma, I did not even blink.

I was given strong ointments that greatly helped to soften the area; however, a while later I realized that the ointment had a very high steroid content. I noticed the effect the steroids were having on me during that time. I stopped the treatment when only a small patch of hard skin remained. Since then, I have been on homeopathy. And while stressful factors have caused the patch to become inflamed occasionally, I generally remain in good health.

To Contact the Author
Andie Friend
Email: imnurbanist@netscape.net
Story posted 10-28-03
Story edited VH1: JTD 9-5-03

Story Artist: Shelley Ensz
Story Editor V1: Judith Devlin
LINKS
Morphea Scleroderma
Voices of Scleroderma Volume 1
This Story is Featured in Voices of Scleroderma Volume 1
Voices of Scleroderma Volume 1
The story on this page is featured in the top-notch Voices of Scleroderma Volume 1 which features articles by top scleroderma experts, including Dr. Joseph Korn, as well as 100 true patient and caregiver stories from this website! The book delivers excellent information and support for scleroderma patients and caregivers. It's a great way to inform family and friends about scleroderma, too!
ISN Story Editor: Judith Thompson Devlin
Judith Rose ThompsonJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series !
New Personal Stories
Donna: CREST, Raynaud's, possible Fibromyalgia I was diagnosed with CREST (Limited Systemic Scleroderma) by a rheumatologist in 2006. This wasn't really a surprise to me as my mother was diagnosed with diffuse scleroderma in 1998...
Jessica G: Parry-Romberg Syndrome By the time I was about five years old, the disease had already disfigured my left side drastically. I have had over fifty operations and surgical procedures for Romberg's....
Leslie R: Scleroderma, Vitiligo, Lupus, Anemia, Hypertension and Type 2 Diabetes He told me that I have scleroderma and explained what this disease is about. After suffering so long I finally got some answers...
More New Stories: Feb-August 2008
Submit Your Patient, Caregiver or Survivor Story in:
Arabic  | Dutch  | English  | Español  | Deutsche (German)
Italiano  | Kannada  | Polski  | Russian  | Spanish  | Turkish  | Other Languages
We will edit your story, create original artwork to decorate it, prepare it for the web, and post it on this site. Just fill out our simple Story Submission Form for your story, updates, or email address changes.
Keep on Surfing!
Go to Andi P: UCTD and Possible Scleroderma
Contact ISN. We are a full-service nonprofit agency.
Email: isn@sclero.org or
or post a message in our Sclero Forums !
Shop, Join or Donate Now
(Also see: Contact ISN )
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702
USA
Toll Free Hotline in U.S. 1-800-564-7099
Direct Line 952-831-3091 (U.S.)
(We are also known as the Scleroderma from A to Z web site.)
© Copyright 1998-2008 International Scleroderma Network
All Rights Reserved