Patient & Caregiver Stories Main Menu
(English) Stories by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z
Stories in Other Languages: French | German | Greek | Italian | Polish | Romanian | Russian | Spanish | Turkish
Stories by Date Posted: 1999 2000 2001 2002 2003 2004 2005 2006 2007 2008 2009 2010

Andy Markman: Systemic Sclerosis (Scleroderma)

That which does not kill us makes us stronger.

Yellow Hibiscus for Andy by Ione Bridgman, ISN Artist Well, where do I start? I am a forty-two-year-old male. I have had scleroderma for two and a half years. It was first diagnosed as an "atypical phenomena", but in reality turned out to be Systemic Sclerosis.

Luckily for me I lived in New York City, and I was put in touch with Dr. Harry Spiera, a rheumatologist who runs the scleroderma clinic at Mt. Sinai Hospital in New York City. He knew exactly what was happening and how to treat me. This man truly is an angel.

I had a bad time of it for the first one and a half years with esophageal involvement, myositis, shingles, osteoporosis, interstitial lung disease, Raynaud's, etc., and I have been on more medication than I care to think about. I am in pain most of the time.

But what I have learned is that I can compensate and live with anything. A German philosopher once wrote, "That which does not kill us makes us stronger." How true that is.

For all of you who have recently contracted this illness, my heart and prayers go out to you. But remember late at night when we feel sorry for ourselves and that little voice in our head says, "Why me?", the answer that comes to me is "Why not me." I do not like it, but I deal with it and I spare my family and friends the "woe is me" stories.

The only bit of advice I can give is stay mentally tough, see your doctor regularly, and live your life the best way you can. God Bless.

To Contact the Author

Andy Markman
Email: amarkman@mlxl.com
Story posted 8-9-02

Story Artist: Ione Bridgeman
Story Editor: Judith Devlin
LINKS
Scleroderma
Esophageal Involvement
Interstitial Lung Disease
Myositis
Mt. Sinai Hospital
Raynaud's
Scleroderma

ISN Artist: Ione Bridgman

Ione BridgmanISN Artist Ione Bridgman created original artwork to illustrate this page. She is 90 years old, and lives in New Zealand. Her lovely paintings illustrate many of our pages and the covers of our Voices of Scleroderma Book Series.

ISN Story Editor: Judith Thompson Devlin

Judith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!
Go to Ang: Morphea and Fibromyalgia
 
 

SCLERO.ORG is the world's leading portal for reliable scleroderma information and support. It is a program of the International Scleroderma Network (ISN). The ISN is a 501(c)(3) public charitable foundation providing stellar worldwide research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. ISN Team Profiles and Volunteer Info.

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA

Ask for our Welcoming Email
Email isn@sclero.org
Toll Free US/Canada Scleroderma Hotline
1-800-564-7099
Sclero Forums Online Support, Chats, Blogs and Videos

 
The most important thing in the world to know about scleroderma is sclero.org!
Copyright 1998-2015, International Scleroderma Network. AKA Scleroderma from A to Z and SCLERO.ORG. All Rights Reserved.