[Skip to Content]
Patient & Caregiver Stories Main Menu
(English) Stories by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z
Stories in Other Languages: French | German | Greek | Italian | Polish | Romanian | Russian | Spanish | Turkish
Stories by Date Posted: 1999 2000 2001 2002 2003 2004 2005 2006 2007 2008 2009 2010

Angela S: Overlap Syndrome (Scleroderma, Polymyositis, Rheumatoid Arthritis)

I could hardly walk or get out of bed.

Pink Daisy for Angela by Sherrill Knaggs, ISN Artist Hello, my name is Angela. I am twenty-five years old and I was diagnosed with polymyositis and scleroderma, rheumatoid arthritis, mitral valve prolapse, a heart murmur, and pericarditis. I was diagnosed with the scleroderma, polymyositis, rheumatoid arthritis on June 5, 2002.

I did not know I had these diseases until I had my son on December 26, 2001. After I had him I became very weak. I could hardly walk or get out of bed. If my feet touched the floor I would scream and cry because it was so painful. When anyone touched my hands or wrist I cried because just from one little touch it hurt so badly. When they found it my CPK (muscle enzyme) level was 5,868.

In August of 2002 I was diagnosed with mitral valve prolapse and a heart murmur, which made me think I was not going to make it out of this mess. I basically gave up on my life. It changed my marriage to where my husband did not love me because I could not satisfy him in a sexual way anymore because my illness was making my body so stiff. He cheated on me because he and his family thought I was just being lazy and I did not love my husband because I could not perform household duties as well as I used to and because I could not perform sexual duties in our marriage.

He and his family thought he should move on and take my only child from me and he should divorce me and start another relationship with another woman and have her and him raise our child. But as a fighting mother I beat the divorce and got custody of my son. My husband moved us away from his family and we to this day are still married now for three years.

I have beaten the disease to where I am stabilized now. I am living proof that you should not give up on your life because of all of this. Yes, you may not be able to do some things like you used to, but at least you are still alive. One can even beat the disease, or at least get stabilized. You may never get rid of the disease, but you should live your life to the fullest.

I have to keep myself healthy so that I will see my son graduate, get married and raise my grandchildren someday.

Well that is my story. I hope I helped someone else understand that even if you have this disease it does not mean your life is over.

To Contact the Author

Angela S.
Email: CoffeyvilleGirl@hotmail.com
Story posted 08-26-04 SLE

ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Devlin
LINKS
Emotional Adjustment Heart Involvement
Polymyositis
Rheumatoid Arthritis
Overlap Syndrome
Scleroderma

ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill KnaggsSherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Story Editor: Judith Thompson Devlin

Judith Rose ThompsonJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

New Personal Stories

Kristi U: Systemic Scleroderma We sold our motel business because it hurt me so bad to work each and every day...
Chris D: Systemic Scleroderma About eighteen months ago my entire body began going haywire...
Iko H: Limited Systemic Sclerosis (Belgium) I am fifty-one years old and in May 2011 my diagnosis of scleroderma was confirmed. I am studying for horse veterinarian and am in my last year...
More New Stories
Submit Your Patient, Caregiver or Survivor Story in:
Arabic  | Dutch  | English  | Español  | Deutsche (German)
Italiano  | Polski  | Russian  | Spanish  | Turkish  | Other Languages
We will edit your story, create original artwork to decorate it, prepare it for the web, and post it on this site. Just fill out our simple Story Submission Form for your story, updates, or email address changes.
 
Go to Angiola: Progressive Systemic Scleroderma
About the ISN

This website is certified by Health On the Net Foundation. Click to verify.We are a full-service nonprofit 501(c)(3) providing stellar worldwide research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. This site complies with the HONcode standard for trustworthy health information: verify here.

 

Scleroderma Hotline (English Only)
Toll Free U.S. Call 1-800-564-7099
Direct Line: Call U.S. 952-831-3091

Post a message in Sclero Forums
Email: isn@sclero.org

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702
United States

AKA Scleroderma from A to Z and SCLERO.ORG
Privacy Policy, Financial Disclosure, and Disclaimer.

Home   Medical   News   Sclero Forums   Support   Translations

© Copyright 1998-2014 International Scleroderma Network
All Rights Reserved