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Anita G: Localized Scleroderma
I want to tell you that you are not alone.

Deep Pink Azalia by Sherrill Knaggs, ISN Artist Hello everyone, I am eighteen years old and unfortunately we were brought together by adversity.

Almost two years ago I was diagnosed with this illness, and they still haven't given me a specific diagnosis, which makes things very difficult since I ask for help and nobody is willing to help me. This all started as a small spot that I thought was insignificant, but as time went on, it grew, along with my symptoms.

At times I feel like my life is meaningless, I am overwhelmed with sadness, fear and solitude, even though I know I am not alone, my family and friends are with me.

I want to tell you that you are not alone, I understand what you are going through, and if you ever want to talk to somebody and share your experiences, you can count on me.

I wish you all that you keep on fighting, and that you keep the faith that together we'll find a solution. Hugs, and good luck in this struggle.

To Contact the Author
Anita G.
New email address needed 08-06-09 SLE
Old Email Prefix:aniguz_83
Story edited 11-23-07 JTD
Story posted 01-21-08 SLE

ISN Senior Artist: Sherrill Knaggs
Story Translator: Alba León
Story Editor: Judith Thompson Devlin
LINKS
Español/Spanish:
Acerca de la Esclerodermia
Anita G: Esclerodermia Localizada
English:
Juvenile Scleroderma
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Morphea Stories
Medical: Diseases and Symptoms
Scleroderma Experts (Worldwide)
Sclero Forums
Symptoms of Scleroderma
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What is Scleroderma?
ISN Artist: Sherrill Knaggs (In Loving Memory)
Sherrill Knaggs Sherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.
ISN Translator and Editor: Alba León
Alba Leon, ISN TranslatorAlba León is the ISN Translator for this page. She is studying international relations in Mexico City.
ISN Story Editor: Judith Thompson Devlin
Judith Rose ThompsonJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!
New Personal Stories
Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end...
(Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia...
(Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was...
Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information...
More New Stories: August-November 2009
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Go to Anna: Linear Scleroderm
 
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