Patient & Caregiver Stories Main Menu
(English) Stories by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z
All Stories by Date Posted: 1999 2000 2001 2002 2003 2004 2005 2006 2007 2008
Stories by Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms
Stories by Language: French | German | Greek | Italian | Polish | Romanian | Russian | Spanish | Turkish
Anita G: Localized Scleroderma
I want to tell you that you are not alone.

Deep Pink Azalia by Sherrill Knaggs, ISN Artist Hello everyone, I am eighteen years old and unfortunately we were brought together by adversity.

Almost two years ago I was diagnosed with this illness, and they still haven't given me a specific diagnosis, which makes things very difficult since I ask for help and nobody is willing to help me. This all started as a small spot that I thought was insignificant, but as time went on, it grew, along with my symptoms.

At times I feel like my life is meaningless, I am overwhelmed with sadness, fear and solitude, even though I know I am not alone, my family and friends are with me.

I want to tell you that you are not alone, I understand what you are going through, and if you ever want to talk to somebody and share your experiences, you can count on me.

I wish you all that you keep on fighting, and that you keep the faith that together we'll find a solution. Hugs, and good luck in this struggle.

To Contact the Author
Anita G.
Email: aniguz_83@yahoo.com
Story edited 11-23-07 JTD
Story posted 01-21-08 SLE

ISN Senior Artist: Sherrill Knaggs
Story Translator: Alba León
Story Editor: Judith Thompson Devlin
LINKS
Español/Spanish:
Acerca de la Esclerodermia
Anita G: Esclerodermia Localizada
English:
Juvenile Scleroderma
Morphea
Morphea Stories
Medical: Diseases and Symptoms
Scleroderma Experts (Worldwide)
Sclero Forums
Symptoms of Scleroderma
Types of Scleroderma
What is Scleroderma?
ISN Artist: Sherrill Knaggs (In Loving Memory)
Sherrill Knaggs Sherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.
ISN Translator and Editor: Alba León
Alba Leon, ISN TranslatorAlba León is the ISN Translator for this page. She is studying international relations in Mexico City.
ISN Story Editor: Judith Thompson Devlin
Judith Rose ThompsonJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series !
New Personal Stories
Nina: Fibromyalgia, Raynaud's, Limited Scleroderma/CREST That is when I found ISN! The volume of reliable, informative, trusted information that I found on this site completely overwhelmed me...
Wade: Scleredema vs Scleroderma At first look, my doctor thought I might have scleroderma, but after doing blood work, they said my tests came back negative...
Mendyon: Mother-in-Law of CREST Patient Unfortunately, as I sit here writing this letter my husband and I are faced with some grim circumstances. She is currently losing her battle to CREST syndrome...
Rhonda L: Systemic Scleroderma I have recently been diagnosed with sclerodema, and am still trying to wrap my brain around this...
Joan B: Scleroderma and Raynaud's One day in 2000, I was raking leaves and my hands were really cold. I went into the house in pain and my hands looked like I had frostbite...
(Update) Donna: CREST, Raynaud's, possible Fibromyalgia It is now one and a half weeks since I had the iloprost infusion and I am very happy to say that my pain has gone in my hands...
Alina: Scleroderma CREST Syndrome This site is very helpful as I have been reading articles of people with my condition and can relate to what they are going through...
Star S: Morphea and Systemic Scleroderma I was diagnosed with morphea at age seven. Now at age thirty-three, I have recently developed systemic scleroderma with gastrointestinal manifestations, Sjogren's syndrome, inflammatory arthritis, malabsorption...
Merry: Deep Morphea They diagnosed it as localized morphea however they did not treat or elaborate...
More New Stories: October 2008
Submit Your Patient, Caregiver or Survivor Story in:
Arabic  | Dutch  | English  | Español  | Deutsche (German)
Italiano  | Polski  | Russian  | Spanish  | Turkish  | Other Languages
We will edit your story, create original artwork to decorate it, prepare it for the web, and post it on this site. Just fill out our simple Story Submission Form for your story, updates, or email address changes.
Keep on Surfing!
Go to Anna: Linear Scleroderm
Contact ISN. We are a full-service nonprofit agency.
Email: isn@sclero.org or
or post a message in our Sclero Forums !
Shop, Join or Donate Now
(Also see: Contact ISN )
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702
USA
Toll Free Hotline in U.S. 1-800-564-7099
Direct Line 952-831-3091 (U.S.)
(We are also known as the Scleroderma from A to Z web site.)
© Copyright 1998-2008 International Scleroderma Network
All Rights Reserved