Ariel D: Pansclerotic Morphea

International Scleroderma Network

SCLERO.ORG

Scleroderma Experts

*Sclero Forums*

ISN Medical Advisory Board for Sclero.org

Over 75 virtual volunteers operate the nonprofit International Scleroderma Network. Please let us know how we can help you.

Warm Hugs,
Shelley Ensz,
ISN Founder & President

Patient & Caregiver Stories Main Menu

(English) Stories by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

All Stories by Date Posted: 1999 2000 2001 2002 2003 2004 2005 2006 2007 2008

Stories by Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms

Stories by Language: French | German | Greek | Italian | Polish | Romanian | Russian | Spanish | Turkish

Ariel D: Pansclerotic Morphea

I started losing weight very fast and my feet and hands started swelling.

I came down with pan sclerotic morphea when I was thirteen years old. I started losing weight very fast and my feet and hands started swelling. I started getting sores on my feet and could hardly stand.

My first treatment was chemotherapy, then steroids, then light treatment.

It has been about three years and I am starting to gain weight and my skin has gotten better. I can walk, run and do just about anything that I want, thanks to medical treatment.

To Contact the Author

Ariel
Email: Withheld by Request
Story edited 08-29-06 JTD
Story posted 10-23-06 SLE

ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Thompson Devlin

LINKS
Pansclerotic Morphea
Morphea
Morphea Stories
Morphea Treatments
Scleroderma Experts
Morphea Treatments
Types of Scleroderma
What is Scleroderma?

ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Story Editor: Judith Thompson Devlin

Judith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series !

New Personal Stories

Donna: CREST, Raynaud's, possible Fibromyalgia I was diagnosed with CREST (Limited Systemic Scleroderma) by a rheumatologist in 2006. This wasn't really a surprise to me as my mother was diagnosed with diffuse scleroderma in 1998...

Jessica G: Parry-Romberg Syndrome By the time I was about five years old, the disease had already disfigured my left side drastically. I have had over fifty operations and surgical procedures for Romberg's....

Leslie R: Scleroderma, Vitiligo, Lupus, Anemia, Hypertension and Type 2 Diabetes He told me that I have scleroderma and explained what this disease is about. After suffering so long I finally got some answers...

More New Stories: Feb-August 2008

Submit Your Patient, Caregiver or Survivor Story in:
Arabic | Dutch | English | Español | Deutsche (German)
Italiano | Kannada | Polski | Russian | Spanish | Turkish | Other Languages

We will edit your story, create original artwork to decorate it, prepare it for the web, and post it on this site. Just fill out our simple Story Submission Form for your story, updates, or email address changes.

Keep on Surfing!

Go to Ashlin: Localized Scleroderma

Contact ISN. We are a full-service nonprofit agency.
Email: isn@sclero.org or or post a message in our Sclero Forums ! Shop, Join or Donate Now (Also see: Contact ISN )	International Scleroderma Network (ISN) 7455 France Ave So #266 Edina, MN 55435-4702 USA	Toll Free Hotline in U.S. 1-800-564-7099 Direct Line 952-831-3091 (U.S.)

(We are also known as the Scleroderma from A to Z web site.)
© Copyright 1998-2008 International Scleroderma Network
All Rights Reserved

Donate in Memory

Recent donors or purchasers of ISN and SCLERO.ORG items:

Donate or Shop Now

Sponsor Earl Manns in Chicago Marathon, October 12, 2008! I'm running in honor of my daughter Mya, and in memory of Sherrill Knaggs. (Also see Donate Now and Earl Manns)