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Ashlin: Localized Scleroderma
It took me five months to realize that I needed to go to the doctor,
and now I feel that I should not have waited so long.

Lavender Rose for Ashlin by Judy Tarro, ISN Artist My name is Ashlin and I was diagnosed with localized morphea linear scleroderma on March 11, 2004. I am eighteen years old.

I started detecting small bruises on my left leg in August. I did not think anything of them until it had spread all over my leg. It took me five months to realize that I needed to go to the doctor, and now I feel that I should not have waited so long.

Then I went to the doctor and they diagnosed me. The doctor told me that this is a very rare disease and that to get it at eighteen years of age is even more rare. I am really scared as to what is going to happen to me. I was involved in almost every sport you can think of and now I cannot participate in any of them due to soreness and pain in my left leg.

I really have not found out too much yet, except for the fact that I have this disease. The doctor told me that there is no cure for this disease and that the best cure is prayer. It is amazing how you think nothing bad can ever happen to you until it really does.

Now God and prayer really come into play. I have always believed in God, but now I need to believe how strong the power of prayer can be.

Webmaster's Note: Localized Scleroderma (Morphea/Linear) typically begins during childhood. Some treatments are available and they are most effective when started early. See a juvenile scleroderma expert for the best treatment advice. Any form of scleroderma that begins during childhood is also referred to as Juvenile Scleroderma.

To Contact the Author

Ashlin
New Email Needed 09-14-06 SLE
Old Email: ashlinalbrecht04@hotmail.com
Story posted 3-24-04 SLE

Story Artist: Judy Tarro
Story Editor: Judith Devlin

LINKS
Juvenile Scleroderma
Linear Scleroderma
Localized: Morphea
What is Scleroderma?
Types of Scleroderma
ISN Artist: Judy Tarro
Judy Tarro, ISN ArtistJudy Tarro, ISN Artist, created the digital photo to illustrate the story on this page. She is also owner of SD World website and email list.
ISN Story Editor: Judith Thompson Devlin
Judith Rose ThompsonJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series !
New Personal Stories
Mila: Morphea Now I am twenty-five years old, and that spot has grown throughout my right leg and on one side of my belly button...
(Español/Spanish) Mila: Morfea Hoy en día tengo 25 años y esa mancha está en toda mi pierna derecha y al lado de mi ombligo...
(Español/Spanish) (Update) Jeins: Esclerodermia Sistemica Difusa y Dermatopolimiositis Ya había escrito mi historia hace 3 años cuando recién estaba pasando por la enfermedad. Para quienes no lo saben tengo esclerodermia y dermatomiositis desde los 19 años.
Alana: Scleroderma (Peru) I cannot open my mouth completely, I have lost strength in my hands, I have breathing problems, my face looks different, my skin is really tight and I have lost my appetite...
(Español/Spanish) Alana: Paciente Nuevo con Esclerodermia (Peru) Le dije que ya no podía abrir la boca completamente, he perdido la fuerza de las manos, tengo problemas respiratorios, mi rosto está diferente, mi piel está dura y he perdido casi el apetito...
Kristy C: Generalized Morphea The only place where I do not have any morphea is my face, which I am very thankful for...
(Update) Raymond: Surviving Son of Scleroderma Patient On October 19th, the Herbert family lost another member of the family to scleroderma. My uncle Edmond has passed on...
More New Stories: November 2008
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