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Audley: Mother of Linear Morphea (en coup de sabre) Patient
My motherly intuition told me that the diagnosis was not correct.

Flowers for Audley by Shelley Ensz Our 21 year old daughter, Diana, was diagnosed in August of 1999 with Morphea Scleroderma. Since it is on her face and head, she is considered to have the en coup de sabre type of Morphea.

After one diagnosis of Vitiligo, my motherly intuition told me that the diagnosis was not correct so we made appointments with two more doctors who confirmed the Morphea diagnosis. (One did a biopsy.)

We found a doctor in Birmingham, Alabama, Dr. Craig Elmets, who specializes in Scleroderma, and he used a UVA 1 light on Diana's lesions for approximately six months. She has shown no signs of the disease progressing.

She is a very happy and beautiful girl and covers her scar with Dermablend. Since the one scar on her forehead is en coup de sabre, it is indented so her skin is uneven there. She deals with it wonderfully. The area on her scalp is right at her "part-line" and because she has lost hair in that area, she parts her hair on the opposite side and it looks fine.

If you need information on the doctor who treated her, feel free to contact me via e-mail at audloe@aol.com

God bless you all!

To Contact the Author
Audley
Email: audloe@aol.com
Story posted 4-20-02
LINKS
Dermablend
en coup de sabre
Juvenile Scleroderma
Vitiligo
ISN's Voices of Scleroderma Volume 2
The story on this page is featured in our book, Voices of Scleroderma Volume 2 ! International Scleroderma Network.
New Personal Stories
Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end...
(Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia...
(Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was...
Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information...
More New Stories: August-November 2009
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