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Barb: Diffuse Systemic Scleroderma
Is there anyone out there going through the same thing?

Pink Bow I was diagnosed in 1985 with systemic scleroderma and Raynaud's disease.

It has affected the esophagus, fingers, toes and bowels, and recently I started having mini strokes.

I have recently gone on disability insurance. I am in the process of being tested for these strokes I am having, and I have to admit I am really scared. Is there anyone out there going through the same thing?

I could really use an understanding email buddy right now, so please feel free to write to me.

To Contact the Author
Barb
New Email: casinolady@shaw.ca
Story Posted 09-28-00
Story edited 07-17-03 SLE
Email comment added 07-17-03
New email added 11-03-04 SLE

Story Artist: Shelley Ensz
LINKS
Bowel Involvement
Diffuse Scleroderma
Disability Resources
Esophagus Involvement
Raynaud's
Types of Scleroderma
New Personal Stories
Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end...
(Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia...
(Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was...
Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information...
More New Stories: August-November 2009
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Go to Barbara H: Generalized Essential Telangiectasia
 
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