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Barb:Diffuse Systemic Scleroderma
Isthere anyone out there going through the same thing?

I was diagnosed in 1985 with systemic scleroderma and Raynaud's disease.

It has affected the esophagus, fingers, toes and bowels, and recently I started having mini strokes.

I have recently gone on disability insurance. I am in the process of being tested for these strokes I am having, and I have to admit I am really scared. Is there anyone out there going through the same thing?

I could really use an understanding email buddy right now, so please feel free to write to me.

To Contact theAuthor
Barb
New Email: casinolady@shaw.ca
Old Email:bddunstan@home.com
Story Posted 09-28-00
Story edited 07-17-03 SLE
Email comment added 07-17-03
New email added 11-03-04 SLE

StoryArtist: Shelley Ensz
LINKS
BowelInvolvement
DiffuseScleroderma
DisabilityResources
EsophagusInvolvement
Raynaud's
Typesof Scleroderma
New Personal Stories
Donna: CREST, Raynaud's, possible Fibromyalgia I was diagnosed with CREST (Limited Systemic Scleroderma) by a rheumatologist in 2006. This wasn't really a surprise to me as my mother was diagnosed with diffuse scleroderma in 1998...
Jessica G: Parry-Romberg Syndrome By the time I was about five years old, the disease had already disfigured my left side drastically. I have had over fifty operations and surgical procedures for Romberg's....
Leslie R: Scleroderma, Vitiligo, Lupus, Anemia, Hypertension and Type 2 Diabetes He told me that I have scleroderma and explained what this disease is about. After suffering so long I finally got some answers...
More New Stories: Feb-August 2008
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