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Bill M: Localized Scleroderma
In 1975, they said I was the fourth known case of localized scleroderma in a male in the United States.

Keys to Happiness for Bill M. by Shelley Ensz In 1975, when I was five years old, they said I was the fourth known case of localized scleroderma in a male in the United States.

I have a deformed left foot and right hand. I have scleroderma plaques covering my left leg, stomach, chin, forehead, and lower back. I have had so many different tests done and doctors from all over the world look at me and take pictures of me, I could write a book!

There have been good times and bad times. I am thirty-two years old now, and I have a beautiful wife and four beautiful children.

All I want to say is that life will go on. I think we should do what makes us happy: pray, fish, ride motorcycles, whatever — and remember there is always someone out there who is worse off than we are.

I believe in using the power of the mind to help make dreams come true.

To Contact the Author
Bill M.
Email: Wams79b@aol.com
Story posted 12-1-01
Story edited VH1: JTD9-5-03

Story Artist: Shelley Ensz
Story Editor V1: Judith Devlin
LINKS
Localized Scleroderma
Voices of Scleroderma Volume 1
This Story is Featured in Voices of Scleroderma Volume 1
Voices of Scleroderma Volume 1
The story on this page is featured in the top-notch Voices of Scleroderma Volume 1 which features articles by top scleroderma experts, including Dr. Joseph Korn, as well as 100 true patient and caregiver stories from this website! The book delivers excellent information and support for scleroderma patients and caregivers. It's a great way to inform family and friends about scleroderma, too!
ISN Story Editor: Judith Thompson Devlin
Judith Rose ThompsonJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series !
New Personal Stories
Mila: Morphea Now I am twenty-five years old, and that spot has grown throughout my right leg and on one side of my belly button...
(Español/Spanish) Mila: Morfea Hoy en día tengo 25 años y esa mancha está en toda mi pierna derecha y al lado de mi ombligo...
(Español/Spanish) (Update) Jeins: Esclerodermia Sistemica Difusa y Dermatopolimiositis Ya había escrito mi historia hace 3 años cuando recién estaba pasando por la enfermedad. Para quienes no lo saben tengo esclerodermia y dermatomiositis desde los 19 años.
Alana: Scleroderma (Peru) I cannot open my mouth completely, I have lost strength in my hands, I have breathing problems, my face looks different, my skin is really tight and I have lost my appetite...
(Español/Spanish) Alana: Paciente Nuevo con Esclerodermia (Peru) Le dije que ya no podía abrir la boca completamente, he perdido la fuerza de las manos, tengo problemas respiratorios, mi rosto está diferente, mi piel está dura y he perdido casi el apetito...
Kristy C: Generalized Morphea The only place where I do not have any morphea is my face, which I am very thankful for...
(Update) Raymond: Surviving Son of Scleroderma Patient On October 19th, the Herbert family lost another member of the family to scleroderma. My uncle Edmond has passed on...
More New Stories: November 2008
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