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Brenda K: Morphea
"It is just deterioration." Just?

Blossoms for Brenda K. by Sherrill Knaggs, ISN Artist Hi, I was diagnosed with morphea scleroderma about twelve years ago. It started with a dark linear mark on my lower back, which is still there, and then with a pure white circle on my cheek. The skin on these areas was very taut and dry feeling. Although the texture is better now, which may be due to the lotion I use, the spot on my face is not pure white any more. It is a different color than the rest of my face.

This year it has changed. I went to a dermatologist and he said it is just deterioration. Just? It is continuing to deteriorate, and I am afraid it is affecting my eye because the eyes are held in place by tissue. Friends have started noticing this a little. Luckily I wear glasses, but I am getting more self-conscious.

Hopefully, I will be seeing a doctor soon and maybe he can help. I just wanted to share with others. Although I know my case isn't serious or life threatening, it is my story and it concerns me.

To Contact the Author
Brenda
Email: kellybrenj@hotmail.com
Story edited 10-3-02
Story posted 10-9-02
Story edited 7-14-03 SLE

ISN Senior Artist: Sherrill Knaggs
Story Editor: Sherry Jo Young
LINKS
Morphea Scleroderma
ISN Artist: Sherrill Knaggs (In Loving Memory)
Sherrill Knaggs Sherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.
New Personal Stories
Mila: Morphea Now I am twenty-five years old, and that spot has grown throughout my right leg and on one side of my belly button...
(Español/Spanish) Mila: Morfea Hoy en día tengo 25 años y esa mancha está en toda mi pierna derecha y al lado de mi ombligo...
(Español/Spanish) (Update) Jeins: Esclerodermia Sistemica Difusa y Dermatopolimiositis Ya había escrito mi historia hace 3 años cuando recién estaba pasando por la enfermedad. Para quienes no lo saben tengo esclerodermia y dermatomiositis desde los 19 años.
Alana: Scleroderma (Peru) I cannot open my mouth completely, I have lost strength in my hands, I have breathing problems, my face looks different, my skin is really tight and I have lost my appetite...
(Español/Spanish) Alana: Paciente Nuevo con Esclerodermia (Peru) Le dije que ya no podía abrir la boca completamente, he perdido la fuerza de las manos, tengo problemas respiratorios, mi rosto está diferente, mi piel está dura y he perdido casi el apetito...
Kristy C: Generalized Morphea The only place where I do not have any morphea is my face, which I am very thankful for...
(Update) Raymond: Surviving Son of Scleroderma Patient On October 19th, the Herbert family lost another member of the family to scleroderma. My uncle Edmond has passed on...
More New Stories: November 2008
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