Patient & Caregiver Stories Main Menu
(English) Stories by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z
All Stories by Date Posted: 1999 2000 2001 2002 2003 2004 2005 2006 2007 2008
Stories by Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms
Stories by Language: French | German | Greek | Italian | Polish | Romanian | Russian | Spanish | Turkish
Brenda M: Primary Biliary Cirrhosis (PBC),
Fibromyalgia, Pulmonary Fibrosis, and Sjogren's Syndrome
I carried on working, very frightened and very ignorant.

In 1965, when I was twenty-six, I went to work for a firm of electro-platers, which was mainly aircraft work. We were contractors for all the big aerospace companies such as British Aerospace, Fokker, Short Brothers, and Boeing. My job was to inspect the components for flaws both before and after plating. I stayed with the company for approximately two years.

Two years after leaving, I gave birth to my daughter. It was not an easy labor. First off, it was dry labor and after the birth I was anaesthetized as they were unable to retrieve the placenta. When I awoke, my baby had been bottle fed, as I had no milk.

A year or two later I had surgery on my legs for varicose veins. When my daughter was eight years old, I, once again, went back to work for that same company, which had expanded greatly.

It was two or three years later when I began to get dreadful abdominal pain. The doctor prescribed Tagamet which helped a lot, so for one year I would just ask for repeat prescriptions.

My doctor insisted I go to the hospital for tests. I was forty-two at that time. The consultant told me that I had had a peptic ulcer which had now scarred over and that my liver was damaged. They advised me to abstain from drinking alcohol (which I did), although I had only ever been a moderate drinker anyway.

During the next few years I was getting more and more fatigued and had another two surgeries for varicose veins.

At age fifty, I was really ill. I went back to the hospital and had more tests and a liver biopsy which was then diagnosed as primary biliary cirrhosis (PBC). The same consultant did have the grace to apologize for not having investigated further after the first diagnosis. I was led to believe it would be a few years to death or transplant and that I should send for him when I was ready for him.

I carried on working, very frightened and very ignorant. There was no one to discuss this with as my own doctors knew nothing at all about it.

My daughter, who by this time was at the university, depended on me as her sole support. I carried on working until I was fifty-four, after also being diagnosed with fibromyalgia and pulmonary fibrosis.

In 1997, I found a liver support group here in my own city. In the group were a number of people who also had PBC and one or two of them had had transplants. These people encouraged me to go back to the hospital.

Once again, I had another biopsy and still the diagnosis was PBC. By this time I was suffering with many infections, costochondritis, and Sjogren's Syndrome. I was practically living on antibiotics.

Two years ago I found out quite by accident that two of the solvents that I had worked with on a daily basis for many years—trichloroethane and trichloroethylene —were more than capable of causing all of these diseases. Now I am sure that I was being systematically poisoned, but trying to prove it is almost impossible.

To Contact the Author
Brenda
Email: brenda.mccoll@btinternet.com
Story edited 01-26-06 JTD
Story posted 01-28-06 SLE

ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Devlin
LINKS
Causes of Scleroderma: Solvents
Costochondritis
Fibromyalgia
Primary Biliary Cirrhosis (PBC)
Pulmonary Fibrosis
Sjogren's Syndrome
What is Scleroderma?
ISN Artist: Sherrill Knaggs (In Loving Memory)
Sherrill KnaggsSherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.
ISN Story Editor: Judith Thompson Devlin
Judith Rose ThompsonJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series !
New Personal Stories
Donna: CREST, Raynaud's, possible Fibromyalgia I was diagnosed with CREST (Limited Systemic Scleroderma) by a rheumatologist in 2006. This wasn't really a surprise to me as my mother was diagnosed with diffuse scleroderma in 1998...
Jessica G: Parry-Romberg Syndrome By the time I was about five years old, the disease had already disfigured my left side drastically. I have had over fifty operations and surgical procedures for Romberg's....
Leslie R: Scleroderma, Vitiligo, Lupus, Anemia, Hypertension and Type 2 Diabetes He told me that I have scleroderma and explained what this disease is about. After suffering so long I finally got some answers...
More New Stories: Feb-August 2008
Submit Your Patient, Caregiver or Survivor Story in:
Arabic  | Dutch  | English  | Español  | Deutsche (German)
Italiano  | Kannada  | Polski  | Russian  | Spanish  | Turkish  | Other Languages
We will edit your story, create original artwork to decorate it, prepare it for the web, and post it on this site. Just fill out our simple Story Submission Form for your story, updates, or email address changes.
Keep on Surfing!
Go to Bri: Morphea Scleroderma
Contact ISN. We are a full-service nonprofit agency.
Email: isn@sclero.org or
or post a message in ourSclero Forums !
Shop, Join or Donate Now
(Also see: Contact ISN )
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702
USA
Toll Free Hotline in U.S. 1-800-564-7099
Direct Line 952-831-3091 (U.S.)
(We are also known as the Scleroderma from A to Z web site.)
© Copyright 1998-2008 International Scleroderma Network
All Rights Reserved