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Candy: My Mother Had Scleroderma

In loving memory of Eula Routh Wurster Daggett
White FlowersMy mother died from scleroderma in October of 2001.

For a long time, she had difficulty finding a doctor who knew something about scleroderma. She was diagnosed with it in 1997. She had all the symptoms that go along with it. When we took her to the hospital, they gave her the breathing tests and then put her on a respirator. She died.

I wonder if the respirator was the best thing, since her lungs and organs were hardening. She was seventy-eight years old when she died.

She was a beautiful lady. Her children and my dad miss her very much.

To Contact the Author
Candy
Email: Withheld by request
Story edited 12-16-04
Story posted 12-16-04 SLE

ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Devlin
LINKS
Scleroderma
Survivor's Stories (In Memory)
What is Scleroderma?
PDF Brochure: What is Scleroderma?
ISN Membership
ISN Artist: Sherrill Knaggs (In Loving Memory)
Sherrill Knaggs Sherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.
ISN Story Editor: Judith Thompson Devlin
Judith Rose ThompsonJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!
New Personal Stories
Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end...
(Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia...
(Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was...
Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information...
More New Stories: August-November 2009
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