[Skip to Content]
Patient & Caregiver Stories Main Menu
(English) Stories by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z
Stories in Other Languages: French | German | Greek | Italian | Polish | Romanian | Russian | Spanish | Turkish
Stories by Date Posted: 1999 2000 2001 2002 2003 2004 2005 2006 2007 2008 2009 2010

Cara R: Morphea

I noticed dark colored spots on the back of my left leg.

Apricot Rosebud by Sherrill Knaggs, ISN Artist I was diagnosed with morphea about a year ago. I first noticed it when I had gone tanning. I did not get burned that day at all, just a light tan, but I noticed when I got home that I had dark colored spots on the back of my left leg. I ignored them for a few months, but then the skin started getting hard so I made an appointment with my doctor.

He did a biopsy but did not know what it was so he referred me to a dermatologist who diagnosed it as morphea, a rare skin disease. She x-rayed my left leg to make sure it had not affected my bones, then gave me some cream and told me not to worry because it would go away on its own.

The cream made my skin burn so I stopped using and it and now (about ten months later), the hard discolored skin has spread over most of my upper left thigh and it has started hurting. It is very sensitive to the touch and my muscle is really tight. I am worried about it spreading and getting worse and my muscle possibly atrophying.

I am only nineteen. I called my doctor again and told him it got worse and that I wanted to see a different dermatologist one who knew more, but I cannot get an appointment for a year and I am worried that by that point it is going to be too late to do anything about it.

Has this been the case for anyone else? If anyone has more information please e-mail me and let me know. All the doctors I have talked to do not know anything about it. Does anyone know of a good doctor in the western Pennsylvania, Ohio, or West Virginia area?

To Contact the Author

Cara R.
Story edited 05-23-05 JTD
Story posted 06-03-05 SLE

ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Devlin
Juvenile Scleroderma
Morphea Stories
Scleroderma Experts
SCTC Scleroderma Expert Centers
Types of Scleroderma
What is Scleroderma?
PDF Brochure: What is Scleroderma?

ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill KnaggsSherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Story Editor: Judith Thompson Devlin

Judith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

New Personal Stories

We are revising our personal story submission program. If you would like to post or update an existing story on our site, please email isn@sclero.org.
Sheri M: CREST Syndrome (Update) It has been three years since I've posted and I am happy to say I am still doing well...
Go to Carla: CREST Syndrome and Fibromyalgia

SCLERO.ORG is operated by the International Scleroderma Network, which is a full-service U.S. nonprofit 501(c)(3) established in 2002. We provide stellar worldwide research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. Donate or Shop Now.

Questions? Post a message in Sclero Forums or email us directly at isn@sclero.org. Or call our Scleroderma Hotline (English only), Toll Free in U.S. 1-800-564-7099 or Direct at 1-952-831-3091. Ask for our Welcoming Email.

Our headquarters postal mailing address is: International Scleroderma Network (ISN), 7455 France Ave So #266, Edina, MN 55435-4702, United States.

The most important thing in the world to know about scleroderma...is sclero.org!
Home   Medical  News  Sclero Forums  Support  Translations  Donate or Shop
Copyright 1998-2015, International Scleroderma Network. AKA Scleroderma from A to Z and SCLERO.ORG. All Rights Reserved.