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Cathy B: Spouse of Scleroderma Patient
It was very devastating news.

Flowers for Cathy by Shelley Ensz My husband, who is fifty-two years old, was diagnosed with scleroderma in September 2000. Of course, it was quite a shock to hear what it actually was, but we had known something was wrong for several years because of the different symptoms he experienced.

I am thirty-seven years old and we are both confused about everything being thrown at us. I am trying to stay positive, but my husband is very pessimistic.

~ Update August 2002 ~

Things are much better now. We have gotten through the last two years with all the support we have received from everyone on this website.

The first year was the worst physically for my husband. He was on many different medications, and between the effects of the medications and the emotional strain, it was overpowering. Thankfully, my husband reacted positively to the medication and has been stable for eight months now.

I would love to hear from other spouses who would like to share their story. We are all here to support each other and get through this hard-to-understand disease together.

Thanks again to the SCLERO.ORG site for all the support and encouraging information you provide. Take care to all of you and god bless.

To Contact the Author
Cathy B.
Tabcat93@aol.com
Story posted 1-03-01
Story update 8-20-02
Vol. 2 matching edits 01-04-05 SLE

Story Artist: Shelley Ensz
Story Editor: Judith Devlin
LINKS
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This story is featured in the book Voices of Scleroderma Volume 2
ISN Story Editor: Judith Thompson Devlin
Judith Rose ThompsonJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!
New Personal Stories
Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end...
(Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia...
(Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was...
Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information...
More New Stories: August-November 2009
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