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Christine M: Morphea
Well, it did not clear up and only got worse.

Yellow Flowers for Christine, by Sherrill Knaggs, ISN Artist During the summer of eighth grade, I started to notice a weird reddish/white film covering part of my left leg by the knee. I did not know what it was and my parents took me to see the doctor. He told us that it was not a problem and that it would clear up in a few weeks. Well, it did not clear up and only got worse.

The lesion started to turn a dark brown and started to spread over my knee. Only then did my doctor tell me to see a dermatologist who did a punch biopsy and found out that I had morphea.

I am eighteen years old now and since then I have been put on many medications and none of them have worked. They only succeeded to cause many kidney infections and a lot of wasted money for my parents.

The morphea has now spread across my entire left leg and part of my right thigh and on both arms and shoulders. I have recently found new spots under my left breast and it does not seem to want to stop. My doctors do not know what to do anymore and that is the scary part for me.

This disease has changed my life greatly and there are many times when I feel like I am all alone and no one else understands what I am going through. Basically, I guess I am just looking for someone to talk to who is going through the same thing. If you know of anyone please have them contact me. Thank you very much.

To Contact the Author
Christine
Email: fireflamegurl07@netscape.net
Story edited 04-03-05
Story posted 04-04-05 SLE

ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Devlin
LINKS
Juvenile Scleroderma
Morphea
Morphea Stories
Types of Scleroderma
PDF Brochure: What is Scleroderma?
ISN Artist: Sherrill Knaggs (In Loving Memory)
Sherrill Knaggs Sherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.
ISN Story Editor: Judith Thompson Devlin
Judith Rose ThompsonJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!
New Personal Stories
Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end...
(Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia...
(Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was...
Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information...
More New Stories: August-November 2009
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Go to Christine S: Diffuse Stage 2 Scleroderma
 
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