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Christine M: Morphea
Well, it did not clear up and only got worse.

Yellow Flowers for Christine, by Sherrill Knaggs, ISN Artist During the summer of eighth grade, I started to notice a weird reddish/white film covering part of my left leg by the knee. I did not know what it was and my parents took me to see the doctor. He told us that it was not a problem and that it would clear up in a few weeks. Well, it did not clear up and only got worse.

The lesion started to turn a dark brown and started to spread over my knee. Only then did my doctor tell me to see a dermatologist who did a punch biopsy and found out that I had morphea.

I am eighteen years old now and since then I have been put on many medications and none of them have worked. They only succeeded to cause many kidney infections and a lot of wasted money for my parents.

The morphea has now spread across my entire left leg and part of my right thigh and on both arms and shoulders. I have recently found new spots under my left breast and it does not seem to want to stop. My doctors do not know what to do anymore and that is the scary part for me.

This disease has changed my life greatly and there are many times when I feel like I am all alone and no one else understands what I am going through. Basically, I guess I am just looking for someone to talk to who is going through the same thing. If you know of anyone please have them contact me. Thank you very much.

To Contact the Author
Christine
Email: fireflamegurl07@netscape.net
Story edited 04-03-05
Story posted 04-04-05 SLE

ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Devlin
LINKS
Juvenile Scleroderma
Morphea
Morphea Stories
Types of Scleroderma
PDF Brochure: What is Scleroderma?
ISN Artist: Sherrill Knaggs (In Loving Memory)
Sherrill Knaggs Sherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.
ISN Story Editor: Judith Thompson Devlin
Judith Rose ThompsonJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series !
New Personal Stories
Mila: Morphea Now I am twenty-five years old, and that spot has grown throughout my right leg and on one side of my belly button...
(Español/Spanish) Mila: Morfea Hoy en día tengo 25 años y esa mancha está en toda mi pierna derecha y al lado de mi ombligo...
(Español/Spanish) (Update) Jeins: Esclerodermia Sistemica Difusa y Dermatopolimiositis Ya había escrito mi historia hace 3 años cuando recién estaba pasando por la enfermedad. Para quienes no lo saben tengo esclerodermia y dermatomiositis desde los 19 años.
Alana: Scleroderma (Peru) I cannot open my mouth completely, I have lost strength in my hands, I have breathing problems, my face looks different, my skin is really tight and I have lost my appetite...
(Español/Spanish) Alana: Paciente Nuevo con Esclerodermia (Peru) Le dije que ya no podía abrir la boca completamente, he perdido la fuerza de las manos, tengo problemas respiratorios, mi rosto está diferente, mi piel está dura y he perdido casi el apetito...
Kristy C: Generalized Morphea The only place where I do not have any morphea is my face, which I am very thankful for...
(Update) Raymond: Surviving Son of Scleroderma Patient On October 19th, the Herbert family lost another member of the family to scleroderma. My uncle Edmond has passed on...
More New Stories: November 2008
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