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Christine: Morphea and Lichen Sclerosus et Atrophicus
I do not want to be stared at and questioned.

Let's Go Dancing, for Christine, by Shelley Ensz I am thirty-two years old, married with two kids, and have been diagnosed with localized morphea and lichen sclerosus et atrophicus.

My first sign of the disease was fifteen years ago. I had peeling skin on my leg. After three doctors and tests for lyme diseas and many other illnesses, I was diagnosed with morphea.

My first treatments consisted of several painful injections into the area and some type of ointment. The next doctor tried Trental, Accutane, Plaquenil, and a few other medications, with little success. Then I was sent to another dermatologist who prescribed a medication with horrific side effects.

After being advised by my family doctor and pharmacist that the risks of that medication exceeded the benefits, I went to another dermatologist. He put me on methotrexate and Dovonex and Ultravate ointments. After one year, I have not noticed any difference in the progression of the disease.

One doctor even suggested that my having spent time in Europe before the disease showed itself may be related somehow! I am now becoming self-conscious about my looks and worried about the pain I have been feeling in my right shoulder.

I am worried that the disease will travel to my face. I do not want to be stared at and questioned. I almost like winter and all this snow, so I can cover up!

I would love to know if there are any other solutions out there. Even ways to cover up a bit when I am in my bathing suit. I hate feeling unattractive. I know that it is what is inside that counts, but after fifteen years, I am starting to become self-conscious. I would love to hear advice, ideas or support.

To To Contact the Author
Christine
New email address needed.
Old Email: meandwilly@hotmail.com
Story posted 1-1-01
Story edited 7-21-03
Email comment posted 7-21-03 SLE

Story Artist: Shelley Ensz
LINKS
Lichen Sclerosus
Morphea Scleroderma

PDF Brochure: What is Scleroderma?
New Personal Stories
Mila: Morphea Now I am twenty-five years old, and that spot has grown throughout my right leg and on one side of my belly button...
(Español/Spanish) Mila: Morfea Hoy en día tengo 25 años y esa mancha está en toda mi pierna derecha y al lado de mi ombligo...
(Español/Spanish) (Update) Jeins: Esclerodermia Sistemica Difusa y Dermatopolimiositis Ya había escrito mi historia hace 3 años cuando recién estaba pasando por la enfermedad. Para quienes no lo saben tengo esclerodermia y dermatomiositis desde los 19 años.
Alana: Scleroderma (Peru) I cannot open my mouth completely, I have lost strength in my hands, I have breathing problems, my face looks different, my skin is really tight and I have lost my appetite...
(Español/Spanish) Alana: Paciente Nuevo con Esclerodermia (Peru) Le dije que ya no podía abrir la boca completamente, he perdido la fuerza de las manos, tengo problemas respiratorios, mi rosto está diferente, mi piel está dura y he perdido casi el apetito...
Kristy C: Generalized Morphea The only place where I do not have any morphea is my face, which I am very thankful for...
(Update) Raymond: Surviving Son of Scleroderma Patient On October 19th, the Herbert family lost another member of the family to scleroderma. My uncle Edmond has passed on...
More New Stories: November 2008
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