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Christy: Systemic Scleroderma with CREST
I have tried to do everything humanly possible to outrun the shadow.

Dahlia for Christy, by Judy Tarro, ISN Artist On my fortieth birthday, I made the decision to pursue a business degree while working full time. I was feeling somewhat run down at the time and decided it was time to have a checkup. I went to my family physician who recommended I have my blood chemistry tested.

When I called back their office for the results, the woman on the other end said I tested positive for lupus. This test result was devastating news until my family physician returned from vacation, called me and explained the test was not indicative of a positive lupus test, but rather high ANA levels, and recommended I see a specialist. I was diagnosed with systemic scleroderma. The symptoms I was experiencing pointed directly to CREST.

I began a regular schedule of routine visits twice a year, which more than not seemed more scary than routine. There was never enough time between visits or freedom from pain to let me forget this shadow that had cast itself upon me. I have tried to do everything humanly possible to outrun the shadow.

I just experienced my forty-eighth birthday. I will never forget the look on my daughter's, husband's and parents' faces when I graduated from school. Fortunately, I have been able to continue working. I firmly believe that if I slow down, I will lose momentum. However, I am more selective on what I consider quality time. Now, I have resigned myself to the fact, it is okay to sit outside in my herb garden or pet my dogs, and just let the housework go. Housework will always be there tomorrow. Special moments that give us true pleasures are sometimes too few and far between.

Most importantly, during these past eight years, I have turned to my faith. I have learned from personal experience that sometimes not even our closest friends want to hear about medical changes taking place within us. It is not because they do not care, but rather their fear of the shadow. My faith has taught me not to judge, but accept their friendship and make the most of each moment.

To Contact the Author
Christy
Email: Withheld by request
Story posted 4-28-04

Story Artist: Judy Tarro
Story Editor: Judith Devlin
LINKS
CREST
Lupus
Systemic Scleroderma
What is Scleroderma? PDF Brochure
ISN Artist: Judy Tarro
Judy Tarro, ISN ArtistJudy Tarro, ISN Artist, created the digital photo to illustrate the story on this page. She is also owner of SD World website and email list.
ISN Story Editor: Judith Thompson Devlin
Judith Rose ThompsonJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series !
New Personal Stories
Mila: Morphea Now I am twenty-five years old, and that spot has grown throughout my right leg and on one side of my belly button...
(Español/Spanish) Mila: Morfea Hoy en día tengo 25 años y esa mancha está en toda mi pierna derecha y al lado de mi ombligo...
(Español/Spanish) (Update) Jeins: Esclerodermia Sistemica Difusa y Dermatopolimiositis Ya había escrito mi historia hace 3 años cuando recién estaba pasando por la enfermedad. Para quienes no lo saben tengo esclerodermia y dermatomiositis desde los 19 años.
Alana: Scleroderma (Peru) I cannot open my mouth completely, I have lost strength in my hands, I have breathing problems, my face looks different, my skin is really tight and I have lost my appetite...
(Español/Spanish) Alana: Paciente Nuevo con Esclerodermia (Peru) Le dije que ya no podía abrir la boca completamente, he perdido la fuerza de las manos, tengo problemas respiratorios, mi rosto está diferente, mi piel está dura y he perdido casi el apetito...
Kristy C: Generalized Morphea The only place where I do not have any morphea is my face, which I am very thankful for...
(Update) Raymond: Surviving Son of Scleroderma Patient On October 19th, the Herbert family lost another member of the family to scleroderma. My uncle Edmond has passed on...
More New Stories: November 2008
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