[Skip to Content]
Patient & Caregiver Stories Main Menu
(English) Stories by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z
Stories in Other Languages: French | German | Greek | Italian | Polish | Romanian | Russian | Spanish | Turkish
Stories by Date Posted: 1999 2000 2001 2002 2003 2004 2005 2006 2007 2008 2009 2010

Claudia: Systemic Scleroderma

Mexico

Red Azaleas by Sherrill Knaggs, ISN Artist Hello, my name is Claudia, and my partner is Diego, we live in Mexico City. Two months ago he was diagnosed with this illness. It is awful to know that one of the people you love has an illness that isn't very common in my country.

Nature is wise, no doubt about it, when something is wrong with our body we have to pay attention. My boyfriend began to have symptoms which he thought were not important. At first he began to have contractures and tendonitis, that wouldn't heal in the appointed time. This limited his movements and limited him in what he could do. Then he got swollen fingers (sausage like), which became Raynaud's.

He went to other doctors and none could tell him the real reason of why this was happening. He was diagnosed many times, always wrong and always with the wrong treatment, so he got tired of doctors and wouldn't listen to his own body anymore. I was worried about him so I insisted on seeng more doctors, but he was in despair and didn't for a while. Afterwards he went to another doctor who confirmed the diagnosis of systemic scleroderma, and said this was causing his symptoms, especially the swelling and pain.

At first him and his family were very sad, so was I when he told me what the diagnosis had been, but now he mentions he has learned to live with his illness. He believes in himself, and fortunately he is doing better than before, he can move better than when he started with the illness. Raynaud's is still there, but the swelling has gone down.

From that moment on my boyfriend and I haven't stopped searching for information about this illness, we have seen a lot of web pages, medical magazines and such that tell us of possible changes my boyfriend could have at a given time.

I hope everyone who reads this can find some help and support in it. Don't give up, get informed. Deep down we all have someone to care for you and support you, and you have someone to do the same for: all the people who are with you, facing the illness.

To Contact the Author

Claudia
Email:Withheld by Request
Story edited 03-12-07 JTD
Story posted 04-13-07 SLE

ISN Senior Artist: Sherrill Knaggs
Story Translator: Alba León
Story Editor: Judith Thompson Devlin
LINKS
(Español) Claudia: Esclerodermia Sistemica
ENGLISH
Caregiver Stories
Contractures and Tendonitis
Difficult Diagnosis
Medical: Diseases and Symptoms
Raynaud's
Raynaud's Stories
Scleroderma Experts (Worldwide)
Swollen Fingers (sausage like): Sclerodactyly
Symptoms of Systemic Scleroderma
Types of Scleroderma
What is Scleroderma?

ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill KnaggsSherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Translator and Editor: Alba León

Alba Leon, ISN TranslatorAlba León is the ISN Translator for this page. She is studying international relations in Mexico City.

ISN Story Editor: Judith Thompson Devlin

Judith Rose ThompsonJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

New Personal Stories

Kristi U: Systemic Scleroderma We sold our motel business because it hurt me so bad to work each and every day...
Chris D: Systemic Scleroderma About eighteen months ago my entire body began going haywire...
Iko H: Limited Systemic Sclerosis (Belgium) I am fifty-one years old and in May 2011 my diagnosis of scleroderma was confirmed. I am studying for horse veterinarian and am in my last year...
More New Stories
Submit Your Patient, Caregiver or Survivor Story in:
Arabic  | Dutch  | English  | Español  | Deutsche (German)
Italiano  | Polski  | Russian  | Spanish  | Turkish  | Other Languages
We will edit your story, create original artwork to decorate it, prepare it for the web, and post it on this site. Just fill out our simple Story Submission Form for your story, updates, or email address changes.
 
Go to Clod: Raynaud's Syndrome
About the ISN

This website is certified by Health On the Net Foundation. Click to verify.We are a full-service nonprofit 501(c)(3) providing stellar worldwide research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. This site complies with the HONcode standard for trustworthy health information: verify here.

 

Scleroderma Hotline (English Only)
Toll Free U.S. Call 1-800-564-7099
Direct Line: Call U.S. 952-831-3091

Post a message in Sclero Forums
Email: isn@sclero.org

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702
United States

AKA Scleroderma from A to Z and SCLERO.ORG
Privacy Policy, Financial Disclosure, and Disclaimer.

Home   Medical   News   Sclero Forums   Support   Translations

© Copyright 1998-2014 International Scleroderma Network
All Rights Reserved