I felt like a freak growing up and I felt so alone.
My name is Crystal and I am thirty years old. I have morphea. I was diagnosed with this when I was ten. It started on my stomach and then spread to my legs.
One day when I was at school I was called to the office and asked if my parents were abusive. This was the last time I wore shorts for a long time. I was mortified.
My mother took me to a skin specialist and all I remember was that this could spread all over and there is no cure. I left the doctor's office in tears. My mother then told me to stop my crying as I was not dying.
I realized over the years that my skin would get very itchy when the Morphea was active. I now have Morphea on my back, most of my legs and some on my arm. I felt like a freak growing up and I felt so alone. Morphea limited my social life as I would never allow anyone to see it unless they were close friends. I was unable to keep a relationship with a man as I could not bear being humiliated if my little secret got out.
It was not until I was twenty seven that I finally found someone who would not be pushed away, as he loved me. I thank god for him. We recently created a miracle, our son.
This is something I never thought I would ever have. I still am reluctant to wear shorts, but in time I hope that I will feel strong enough to deal with the ignorant people who have no idea how much a snicker, staring or rude questions can hurt someone's feelings.
Thank you for listening to my story.
New email address needed 09-26-06 SLE
Old Email Prefix: mrpcs12
Story posted 1-27-03
ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Devlin
SCLERO.ORG is the world's leading portal for reliable scleroderma information and support. It is a program of the International Scleroderma Network (ISN). The ISN is a 501(c)(3) public charitable foundation providing stellar worldwide research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. ISN Team Profiles and Volunteer Info.
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
Ask for our Welcoming Email!
Toll Free US/Canada Scleroderma Hotline