[Skip to Content]
Patient & Caregiver Stories Main Menu
(English) Stories by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z
Stories in Other Languages: French | German | Greek | Italian | Polish | Romanian | Russian | Spanish | Turkish
Stories by Date Posted: 1999 2000 2001 2002 2003 2004 2005 2006 2007 2008 2009 2010

Crystal R: Morphea

I felt like a freak growing up and I felt so alone.

Bluebells Maidenhair by Sherrill Knaggs, ISN Artist My name is Crystal and I am thirty years old. I have morphea. I was diagnosed with this when I was ten. It started on my stomach and then spread to my legs.

One day when I was at school I was called to the office and asked if my parents were abusive. This was the last time I wore shorts for a long time. I was mortified.

My mother took me to a skin specialist and all I remember was that this could spread all over and there is no cure. I left the doctor's office in tears. My mother then told me to stop my crying as I was not dying.

I realized over the years that my skin would get very itchy when the Morphea was active. I now have Morphea on my back, most of my legs and some on my arm. I felt like a freak growing up and I felt so alone. Morphea limited my social life as I would never allow anyone to see it unless they were close friends. I was unable to keep a relationship with a man as I could not bear being humiliated if my little secret got out.

It was not until I was twenty seven that I finally found someone who would not be pushed away, as he loved me. I thank god for him. We recently created a miracle, our son.

This is something I never thought I would ever have. I still am reluctant to wear shorts, but in time I hope that I will feel strong enough to deal with the ignorant people who have no idea how much a snicker, staring or rude questions can hurt someone's feelings.

Thank you for listening to my story.

To Contact the Author

New email address needed 09-26-06 SLE
Old Email Prefix: mrpcs12
Story posted 1-27-03

ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Devlin
Morphea Scleroderma

ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill KnaggsSherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Story Editor: Judith Thompson Devlin

Judith Rose ThompsonJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

New Personal Stories

Kristi U: Systemic Scleroderma We sold our motel business because it hurt me so bad to work each and every day...
Chris D: Systemic Scleroderma About eighteen months ago my entire body began going haywire...
Iko H: Limited Systemic Sclerosis (Belgium) I am fifty-one years old and in May 2011 my diagnosis of scleroderma was confirmed. I am studying for horse veterinarian and am in my last year...
More New Stories
Submit Your Patient, Caregiver or Survivor Story in:
Arabic  | Dutch  | English  | Español  | Deutsche (German)
Italiano  | Polski  | Russian  | Spanish  | Turkish  | Other Languages
We will edit your story, create original artwork to decorate it, prepare it for the web, and post it on this site. Just fill out our simple Story Submission Form for your story, updates, or email address changes.
Go to Cynthia: Diffuse Scleroderma
About the ISN

This website is certified by Health On the Net Foundation. Click to verify.We are a full-service nonprofit 501(c)(3) providing stellar worldwide research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. This site complies with the HONcode standard for trustworthy health information: verify here.


Scleroderma Hotline (English Only)
Toll Free U.S. Call 1-800-564-7099
Direct Line: Call U.S. 952-831-3091

Post a message in Sclero Forums
Email: isn@sclero.org

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702
United States

AKA Scleroderma from A to Z and SCLERO.ORG
Privacy Policy, Financial Disclosure, and Disclaimer.

Home   Medical   News   Sclero Forums   Support   Translations

© Copyright 1998-2014 International Scleroderma Network
All Rights Reserved