Patient & Caregiver Stories Main Menu
(English) Stories by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z
All Stories by Date Posted: 1999 2000 2001 2002 2003 2004 2005 2006 2007 2008 ;2009
Stories by Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms
Stories by Language: French | German | Greek | Italian | Polish | Romanian | Russian | Spanish | Turkish
Crystal: Morphea Scleroderma
This is a very misunderstood disease.

Blossoms of Brooms by Shelley Ensz Hi, my name is Crystal Pendley. I am from Purcell, Oklahoma. I am twenty-three years old, and I was recently diagnosed with morphea scleroderma, of the skin only.

I was devastated because my physician told me there was no cure. I decided to go to a dermatologist and see what I could do, and now I am getting treatments for it. I started with some creams and from there we are going to do phototherapy, PUVA, narrow bands.

This doctor has cured others with this disease, who have been left with little scarring. I am so glad and thankful for Dr. Paul Gillum. So there is hope for those out there with morphea.

It is a very misunderstood disease. There are so many different types. I have mine on my spine, oval shaped and looks like a bruise on the outer circle and has gotten large over the period of a year and a half. It started as the size of a pencil eraser and has grown to the size of a large orange, another spot has come up on the side of the other one, the size of a pencil eraser. I had biopsies taken off of both spots. So you really cannot see the little one.

I will update you on the progress of my visits. Thank you for listening and I hope and pray that everyone finds a treatment that works for you.

To Contact the Author
Crystal
Old Email Prefix: cjp4aa
Story posted 7-11-00
New email address needed 9-2-03

Story Artist: Shelley Ensz
LINKS
Morphea Scleroderma
New Personal Stories
Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end...
(Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia...
(Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was...
Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information...
More New Stories: August-November 2009
Submit Your Patient, Caregiver or Survivor Story in:
Arabic  | Dutch  | English  | Español  | Deutsche (German)
Italiano  | Polski  | Russian  | Spanish  | Turkish  | Other Languages
We will edit your story, create original artwork to decorate it, prepare it for the web, and post it on this site. Just fill out our simple Story Submission Form for your story, updates, or email address changes.
 
Go to Crystal R: Morphea
 
SCLERO.ORG is brought to you by the nonprofit International Scleroderma Network (ISN). The ISN is a full-service nonprofit scleroderma charitable foundation providing stellar research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension.
  1. Post a message in Sclero Forums!
  2. Email: isn@sclero.org
  3. English Email Form
  4. Español Email Form
  5. Italiano Email Form
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702
United States
Toll Free Hotline in U.S.
Hours: 9am-3pm CST only.
Please leave a complete message, in English.
1-800-564-7099
Direct Line
1-952-583-5735
We are also known as the Scleroderma from A to Z web site.
© Copyright 1998-2010 International Scleroderma Network
All Rights Reserved