| Stories
in English: D |
| Daisy:
Sjogren's, Spondyloarthritis and Fibromyalgia Everything
started two years ago, with a pain in my knee for which
I got surgery... |
| Damaris:
Morphea I am wondering if there is any treatment
for this.... |
| Danene:
Daughter of CREST Scleroderma Patient Especially
knowing that your loved one may eventually die from
this disease... |
| Dani:
Chronic Adult-Onset Asthma I wish I knew about
filing for disability for such a illness. I am not
sure if Asthmatics are covered in this area... |
| Danie:
CREST Scleroderma My parents always thought
of it as an excuse to miss school. It all started with
my hands... |
| Daniel
B. Koch: Mixed Connective Tissue Disease with Scleroderma Two
months after I was born the doctors noticed that my
growth rate was very slow... |
| Daphne:
Daughter of Scleroderma/Polymyositis/Antisynthetase
Syndrome Overlap Patient By early 2005, she
began to exhibit Raynaud's phenomenon. She was also
having swelling in her face, hands and feet... |
| Darlene:
Diffuse Scleroderma (New Jersey) Now that I
have become more knowledgeable about scleroderma, I
feel I can cope with it better... |
| Dave
S: Undiagnosed and Brother of Scleroderma Patient A
small black spot appeared on my left index finger around
Easter of 2004. It has not grown in the past six months,
but it also has not healed... |
| David
B: Raynaud's I am fifty-one years old and suffer
with Raynaud's, bipolar affective disorder, high anxiety
and phobias for which I am unable to take medication... |
| Dave
Wilcher: Diffuse Scleroderma Early in 1998,
I noticed my hands were swollen. I had a hard time
gripping the handle of my coffee cup... |
| Davie's
Mom: Mother of Linear Scleroderma Patient Davie
could be a candidate for skin grafts. If anyone has
tried this I would love some input... |
| Dawn:
Confirmed Early Scleroderma I am awaiting
surgery for a rotator cuff injury. I now understand
this might be a symptom of my scleroderma... |
| Dawn
S: CREST Syndrome The majority of doctors that
I have seen have been unhelpful, unsympathetic and
downright rude to me... |
| Dawna:
Raynaud's with CREST? I am in my mid forties
and was diagnosed with Raynaud's when I was about twenty-two... |
| Daynelle:
Morphea Needless to say, I do not want anymore
spots and I am terrified of this spreading... |
| Debbie:
CREST Here's a copy of a letter I sent to my
rheumatologist.... |
| Debbie
G: CREST, Lupus, Interstitial Lung Disease and Pulmonary
Hypertension It has been a very long and bumpy
road at times but somehow through all the hospital
visits and other illnesses I have managed to stay ahead
of the game by a step or two... |
| Debbie
W: Mother of Linear Scleroderma Patient Because
my daughter's face was being affected so severely with
atrophy, hair loss, and partial loss of her eyebrow
we began a treatment program... |
| Debbie
M: CREST Scleroderma, Systemic Lupus, Rheumatoid Arthritis,
Ankylosing Spondylitis, and Fibromyalgia When
we are given the CREST diagnosis, does that mean that
we definitely will have the tight skin eventually? |
| Debby:
CREST Scleroderma It was then everything added
up— that I did not have several different conditions,
but rather they were all part of the CREST... |
| Debby
B: Systemic Sclerosis I began experiencing unexplained
aches and fatigue, along with swelling and numbness
in my hands, at the end of 1999... |
| Deborah
Peck: Diffuse Systemic Sclerosis I first noticed
my hands turning white in 1992 after my father's funeral... |
| Debra
K: Daughter of Scleroderma Patient (Canada)
I wish that there was something I could give her from
my healthy body... |
| Debra
R: Mother of Emma, Linear Scleroderma Patient It
is so good to have support and be able to ask questions
and have them answered. Now I can explain to Emma what
is going on... |
| Debs
C: Surviving Daughter of Fibrosing Alveolitis Patient I
miss her terribly, but am thankful that she did not
have to live in a helpless state, which was her greatest
dread... |
| Deedra:
Linear Scleroderma In the course of two years
the scleroderma spread from under my knee to the top
of my thigh... |
| Dee:
Daughter of Scleroderma Patient Three years
ago my mother was diagnosed with scleroderma. My aunt
died of scleroderma last year... |
| Del:
Deaf with Systemic Scleroderma It's my hope
and wish to make contact with someone else who is also
Deaf with SD... |
| Denise:
Systemic Sclerosis and CREST It all started
when I was sixteen years old. I was having awful pains
in my hands and feet... |
| Denise
E: Diffuse Scleroderma I was first diagnosed
with diffuse scleroderma in February 2002, but my symptoms
began subtly in the summer of 2000... |
| Desiraye:
Linear Morphea When I was 14 years old, I spent
the whole summer laying out in the sun. I developed
a white patch... |
| Diane
M: MCTD, and Surviving Sister of Scleroderma Patient I
do not know what lies ahead for me on this path, I
only hope that I can be as strong as my sister was... |
| Dianne
R: Crest, Pulmonary Fibrosis Twelve years ago
they told me I would never see fifty and I have beaten
them by three years... |
| Dienne:
Morphea plus possible CREST I finally saw a
rheumatologist about 6 years ago, who told me I had
Raynaud's and Telangiectasia (spider veins)... |
| Dimitra
Stafilia: Daughter of Systemic Scleroderma Patient I
am the ISN Greek Translator. My mum has been suffering
from scleroderma since 1992... |
| D.M.:
Son of Mother with Doubtful Diagnosis (Kosovo,
Yugoslavia) I will do my best to help my mother.
She is the only person I have in this world... |
| D.M.
Hoffe: Progressive Systemic Sclerosis (Scleroderma
CREST) After an endoscopy it was discovered
I had a Watermelon Stomach... |
| Don
Alfera: CREST, Pulmonary Fibrosis and Sjögren's I
entitled this "My Time So Far" since this
has been a journey unlike any that I could have ever
tried to imagine in my life... |
| Doni:
CREST Syndrome The doctors were always interested
like, "Wow look at this," but since I had
no insurance, they would not touch me... |
| Donna
C: Undifferentiated Connective Tissue Disease (UCTD) I
am beginning to get tired of going for test after test
and not find a specific reason for my symptoms... |
| Donna
D: Systemic Scleroderma No one shares a timeline
with me or will tell me what to expect next... |
| Donna
H: CREST, Autoimmune Hepatitis, Fibromyalgia I
also have degenerative disc disease, osteoarthritis,
anxiety/depression/panic disorder, irritable bowel... |
| Donna
M: CREST Scleroderma It all started with an
infection at the end of my index finger in December
1999. My finger became red, inflamed and sore to touch... |
| Donna
S: Odd Version of Scleroderma My dermatologist
has spoken with numerous dermatologists across the
country, and they have not heard of my particular case
of scleroderma. They also have not heard of blisters
being associated with scleroderma in any form... |
| Dora:
Linear Scleroderma I was diagnosed with linear
scleroderma (en coup de sabre) in Romania 41 years
ago... |
| Doreen:
Mother of Morphea Scleroderma Patient My daughter
Corinne was diagnosed with Morphea when she was six
years old. She is now 22... |
| Doris: Morphea I was
diagnosed with morphea in 2006. It started with itching that would
not stop and now after a year and a half later it is still itching
and
painful... |
| Dot:
Mother of Morphea/Linear Patient I have read
many of the stories posted and have felt encouraged
by them... |
| Dotty:
Scleroderma, Sjögren's, Parotid Lymphoma I
have taken control of my life and I just know there
is a wonderful future for me... |
| Dwight:
Surviving Son of Scleroderma Patient My dear
mother, Drema L Shaver, passed away one year ago today... |
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