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Daisy: Sjögren's, Spondyloarthritis and Fibromyalgia
Italy

Scotch Thistle with Bumble Bee by Sherrill Knaggs, ISN Artist Hello everyone. I am a twenty-four-year-old girl. Everything started two years ago, with a pain in my knee for which I had surgery. Afterwards the pain began in my back and now I am in pain in all of my body.

Six months ago, I was diagnosed with Sjögren's Syndrome, spondyloarthritis and fibromyalgia.

Some doctors told me that now I could not live without pain, so I must be making it up?
To Contact the Author
Daisy
Email:deby.24@rossoalice.it
Story edited 06-25-06 JTD
Story posted 08-04-06 SLE

ISN Senior Artist: Sherrill Knaggs
Story Translator: Alba León
Story Editor: Judith Devlin 		LINKS
 Fibromyalgia
Fibromyalgia Stories
Sjögren's Syndrome
Sjogren's Stories
ISN Artist: Sherrill Knaggs (In Loving Memory)
Sherrill Knaggs Sherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.
ISN Story Editor: Judith Thompson Devlin
Judith Rose ThompsonJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series !
ISN Translator and Editor: Alba León
Alba Leon, ISN TranslatorAlba León is the ISN Translator for this page. She is studying international relations in Mexico City.
New Personal Stories
Alana: Scleroderma (Peru) I cannot open my mouth completely, I have lost strength in my hands, I have breathing problems, my face looks different, my skin is really tight and I have lost my appetite...
(Español/Spanish) Alana: Paciente Nuevo con Esclerodermia (Peru) Le dije que ya no podía abrir la boca completamente, he perdido la fuerza de las manos, tengo problemas respiratorios, mi rosto está diferente, mi piel está dura y he perdido casi el apetito...
Kristy C: Generalized Morphea The only place where I do not have any morphea is my face, which I am very thankful for...
(Update) Raymond: Surviving Son of Scleroderma Patient On October 19th, the Herbert family lost another member of the family to scleroderma. My uncle Edmond has passed on...
Sharon H: Scleroderma/Morphea It has been thirty-two years living with this and it has progressively gotten much worse and has spread...
Teena: En Coup De Sabre My mother and I went to Johns Hopkins Hospital. They did what was called 'Grand Rounds' where about fifty doctors were looking at me taking pictures and videotaping me...
More New Stories: November 2008
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