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Diane M: MCTD, and Surviving Sister of Scleroderma Patient
I only hope that I can be as strong as my sister was.

Mysister passed away six years ago at the age of forty-nine.She first was diagnosed with breastcancer. She had a mastectomy followed by chemotherapy.She then developed scleroderma.

It was hard to watch her going through allof that. She had a lot of difficulty breathing, and hadto be on oxygen allthe time. Her arms and hands would swell up and I rememberthe skin on her fingers was so tight and shiny.

I never once heard her complain. She boreit all with such dignity. On the day before she died, herdaughter graduated from college. I thank God that she wasable to make it to see her daughter walk down that isleand receive her diploma. She passed away that next daywhile laying on her living room sofa.

I still think of her very often, and trulymiss her loving and caring ways.

Last summer I was diagnosed with MixedConnective Tissue Disease (MCTD). I do not know whatlies ahead for me on this path, I only hope that I canbe as strong as my sister was.

To Contact the Author
Diane M.
Email: Withheld by request
Story edited 07-16-05 JTD
Story posted 07-19-05 SLE

ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Devlin
LINKS
Cancer and Scleroderma
Pulmonary Fibrosis
Mixed Connective Tissue Disease
Scleroderma
Scleroderma Survivor's Stories
What is Scleroderma?
ISN Artist: Sherrill Knaggs (In Loving Memory)
Sherrill KnaggsSherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.
ISN Story Editor: Judith Thompson Devlin
Judith Rose ThompsonJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series !
New Personal Stories
Donna: CREST, Raynaud's, possible Fibromyalgia I was diagnosed with CREST (Limited Systemic Scleroderma) by a rheumatologist in 2006. This wasn't really a surprise to me as my mother was diagnosed with diffuse scleroderma in 1998...
Jessica G: Parry-Romberg Syndrome By the time I was about five years old, the disease had already disfigured my left side drastically. I have had over fifty operations and surgical procedures for Romberg's....
Leslie R: Scleroderma, Vitiligo, Lupus, Anemia, Hypertension and Type 2 Diabetes He told me that I have scleroderma and explained what this disease is about. After suffering so long I finally got some answers...
More New Stories: Feb-August 2008
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