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Diane M: MCTD, and Surviving Sister of Scleroderma Patient
I only hope that I can be as strong as my sister was.

Koala Hugs for Diane by Sherrill Knaggs, ISN Artist My sister passed away six years ago at the age of forty-nine. She first was diagnosed with breast cancer. She had a mastectomy followed by chemotherapy. She then developed scleroderma.

It was hard to watch her going through all of that. She had a lot of difficulty breathing, and had to be on oxygen all the time. Her arms and hands would swell up and I remember the skin on her fingers was so tight and shiny.

I never once heard her complain. She bore it all with such dignity. On the day before she died, her daughter graduated from college. I thank God that she was able to make it to see her daughter walk down that isle and receive her diploma. She passed away that next day while laying on her living room sofa.

I still think of her very often, and truly miss her loving and caring ways.

Last summer I was diagnosed with Mixed Connective Tissue Disease (MCTD). I do not know what lies ahead for me on this path, I only hope that I can be as strong as my sister was.

To Contact the Author
Diane M.
Email: Withheld by request
Story edited 07-16-05 JTD
Story posted 07-19-05 SLE

ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Devlin
LINKS
Cancer and Scleroderma
Pulmonary Fibrosis
Mixed Connective Tissue Disease
Scleroderma
Scleroderma Survivor's Stories
What is Scleroderma?
ISN Artist: Sherrill Knaggs (In Loving Memory)
Sherrill Knaggs Sherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.
ISN Story Editor: Judith Thompson Devlin
Judith Rose ThompsonJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!
New Personal Stories
Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end...
(Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia...
(Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was...
Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information...
More New Stories: August-November 2009
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