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Dodo: Limited Systemic Scleroderma

Italy

Tiny Purple Flower by Shelley EnszI am fifty-seven years old and I have suffered from scleroderma for the past fifteen years. Everything started with slight numbness in my hands, followed by other symptoms. The tips of my fingers turned cold, and then became cyanotic, always hurt and in the end they became ulcerated.

In a month, they did a lot of tests, but only after a period in the Siena Hospital, after a painful experience, I was diagnosed with Raynaud’s syndrome with limited systemic scleroderma. Until today my internal organs have not been compromised, the main problem is still my hands, that often present calcifications that are painful, and the joint pain. I take cortisone, aspirin for the microcirculation, and adalat crono 30, as well as one pill per week of alendronate for the bones.

Thanks for the attention and I am willing to hear your suggestions.

To Contact the Author
Dodo
Email: dmicalevich@tele2.it
Story edited 07-14-09 JTD
Story posted 07-21-09 SLE

Story Artist: Shelley Ensz
Story Translator: Alba León
Story Editor: Judith Thompson Devlin
LINKS
Italian:
Dodo: Sclerodermia Sistemica Limitata
Cos'è la Sclerodermia
Raynaud
Raynaud Storie di Pazienti
Tipi di Sclerodermia: Limitata
Tipi di Sclerodermia: Limitata Storie

English:
Calcinosis
Calcinosis Stories
Digital Ulcers
Digital Ulcer Stories
Limited Scleroderma
Limited Scleroderma Stories
Raynaud's
Raynaud's Stories
Skeletal Involvement
Skeletal Involvement Stories
Medical: Diseases and Symptoms
Scleroderma Experts (Worldwide)
Sclero Forums
Symptoms of Scleroderma
Types of Scleroderma
What is Scleroderma?
ISN Translator and Editor: Alba León
Alba Leon, ISN TranslatorAlba León is the ISN Translator for this page. She is studying international relations in Mexico City.
ISN Story Editor: Judith Thompson Devlin
Judith Rose ThompsonJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!
New Personal Stories
Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end...
(Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia...
(Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was...
Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information...
More New Stories: August-November 2009
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