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Donna D: Systemic Scleroderma
No one shares a timeline with me or will tell me what to expect next.

Peach Blossom 3 by Sherrill Knaggs, ISN Artist I am a 59 year old female and I was diagnosed with systemic scleroderma three months ago.

At this time the problems are mostly skin related, with hardening and lesions. I am tired a lot and am in pain under my arms. The back of my knees are so hard that I have difficulty bending. I am frequently chilled.

I'm just beginning to have difficulty swallowing and have pain in my kidney area. I am taking Minocycline 100 mg. twice a day. It has helped my skin to soften and the lesions to start shrinking.

My legs do not straighten out in bed at night due to swelling in the groin area and tightening of the skin. I seem to be puffy. I do not have the typical involvement in my hands and it took months and many tests to diagnose my case.

No one shares a timeline with me or will tell me what to expect next. I am trying to just enjoy each new day and attack each new symptom as it comes about.

To Contact the Author
Donna D.
New email address needed 09-26-06 SLE
Old Email Prefix: ARTDAWM
Story submitted 6-20-02
Story posted 7-11-02
LINKS
Difficult Diagnosis
Dysphagia (Difficulty Swallowing)
Reflux
Scleroderma
Skin Fibrosis (hardening)
ISN Artist: Sherrill Knaggs (In Loving Memory)
Sherrill Knaggs Sherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.
New Personal Stories
Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end...
(Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia...
(Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was...
Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information...
More New Stories: August-November 2009
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Go to Donna H: CREST, Autoimmune Hepatitis, Fibromyalgia
 
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