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Doreen: Mother of Morphea Scleroderma Patient
My daughter Corinne was diagnosed when she was six years old.

Flowers for Corinne by Shelley Ensz My name is Doreen and my daughter Corinne was diagnosed with morphea when she was six years old.

She had six round, hard white patches on her back. They were treated with cortisone tape, which I cut to fit the patch at night before she went to bed.

In time the spots softened, but when the pigment returned it was much darker than her normal skin tone,and her back appears to look scarred. She is now twenty-two, and is still self-conscious of how her back looks, especially in the summer when everyone is wearing a bathing suit.

Her dermatologist has since retired and we are currently looking for someone knowledgeable in this disease. Lately she has been complaining that the muscles in her back hurt. We are concerned that the morphea is doing something to cause this discomfort, and hope to find a treatment, if that is the case.

To Contact the Author
Doreen
Angel41921@aol.com
Story posted 4-11-01
Story edited 7-25-03 SLE
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Caregiver Stories
Juvenile Scleroderma
Morphea Scleroderma
New Personal Stories
Mila: Morphea Now I am twenty-five years old, and that spot has grown throughout my right leg and on one side of my belly button...
(Español/Spanish) Mila: Morfea Hoy en día tengo 25 años y esa mancha está en toda mi pierna derecha y al lado de mi ombligo...
(Español/Spanish) (Update) Jeins: Esclerodermia Sistemica Difusa y Dermatopolimiositis Ya había escrito mi historia hace 3 años cuando recién estaba pasando por la enfermedad. Para quienes no lo saben tengo esclerodermia y dermatomiositis desde los 19 años.
Alana: Scleroderma (Peru) I cannot open my mouth completely, I have lost strength in my hands, I have breathing problems, my face looks different, my skin is really tight and I have lost my appetite...
(Español/Spanish) Alana: Paciente Nuevo con Esclerodermia (Peru) Le dije que ya no podía abrir la boca completamente, he perdido la fuerza de las manos, tengo problemas respiratorios, mi rosto está diferente, mi piel está dura y he perdido casi el apetito...
Kristy C: Generalized Morphea The only place where I do not have any morphea is my face, which I am very thankful for...
(Update) Raymond: Surviving Son of Scleroderma Patient On October 19th, the Herbert family lost another member of the family to scleroderma. My uncle Edmond has passed on...
More New Stories: November 2008
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