TV Video: Hannah - Health Insurance Story. View her fight for insurance coverage for the SCOT Trial, with David Becker, ISN Assistant News Guide.
Tackle Scleroderma! Join/Shop/Donate
SCLERO.ORG by the nonprofit International Scleroderma Network (ISN) is a full-service nonprofit charitable foundation providing stellar research, support, education and awareness
Search sclero.org:

Patient & Caregiver Stories Main Menu
(English) Stories by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z
All Stories by Date Posted: 1999 2000 2001 2002 2003 2004 2005 2006 2007 2008 ;2009
Stories by Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms
Stories by Language: French | German | Greek | Italian | Polish | Romanian | Russian | Spanish | Turkish
Eliza: Daughter-in-Law of Morphea Patient
Who should we listen to? Who is right? Where should we look for help?

Hibiscus by Ione Bridgman, All Rights Reserved Welcome. My name is Eliza and this story is not about me but about my mother-in-law.

Three years ago a mark appeared on my mother-in-law's thigh; she thought that she had hurt herself and that was the reason she had this blemish. After some time the mark started to grow bigger and so she went to see a dermatologist, who took a biopsy.

Unfortunately, he did not make a clear diagnosis and started trial-and-error treatment; he also used steroids that were, however, not successful. Despite taking different tablets and applying various creams to the mark, no improvement was seen.

Later on, new marks appeared under one breast and in an armpit. My mother-in-law abandoned this doctor and went to see another one who also took a biopsy but then diagnosed scleroderma. The doctor said that the disease is incurable but not too severe; one has to learn how to live with it. And that is how he concluded his treatment.

In the meantime her ankle swelled up. She went to a rheumatologist who, after performing some tests, diagnosed lymphangitis and said that it could be linked to scleroderma. The rheumatologist warned her that scleroderma is by no means a benign disease, but it can be linked to a stomach problem for which my mother-in-law has been treated for many years as well as to her asthma. He concluded that scleroderma could attack the entire body including the bones and the internal organs. Who should we listen to? Who is right? Where should we look for help?

To end, I add only that my Mother-in-law has undergone several operations and has taken countless pills (but she is not an abuser of drugs).

Thank you for your interest.

Yours Sincerely,

Eliza

To Contact the Author
Eliza
New email address needed 08-06-09 SLE
Old Email Prefix: karolina97
Story posted 7-3-02
Story edited in Polish by
Dr. Magdalena Dziadzio.
Dr. Dziadzio commentary added (Polish version only) on 7-28-02.
Story translated to English by
Dr. Magdalena Dziadzio and
Dr. Roy Smith on 9-10-02.

Story Artist: Ione Bridgman
LINKS
Morphea (English)

Historia Elizy (Polski)
Sklerodermia od A do Z (Polski)
This story is in
Voices of Scleroderma Volume 2
in both Polski (Polish) and English.
ISN Artist: Ione Bridgman
Ione Bridgman ISN Artist Ione Bridgman created original artwork to illustrate this page. She is 90 years old, and lives in New Zealand. Her lovely paintings illustrate many of our pages and the covers of our  Voices of Scleroderma Book Series .
New Personal Stories
Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end...
(Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia...
(Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was...
Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information...
More New Stories: August-November 2009
Submit Your Patient, Caregiver or Survivor Story in:
Arabic  | Dutch  | English  | Español  | Deutsche (German)
Italiano  | Polski  | Russian  | Spanish  | Turkish  | Other Languages
We will edit your story, create original artwork to decorate it, prepare it for the web, and post it on this site. Just fill out our simple Story Submission Form for your story, updates, or email address changes.
 
Go to Elizabeth G: Diffuse Scleroderma
 
SCLERO.ORG is brought to you by the nonprofit International Scleroderma Network (ISN). The ISN is a full-service nonprofit scleroderma charitable foundation providing stellar research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension.
  1. Post a message in Sclero Forums!
  2. Email: isn@sclero.org
  3. English Email Form
  4. Español Email Form
  5. Italiano Email Form
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702
United States
Toll Free Hotline in U.S.
Hours: 9am-3pm CST only.
Please leave a complete message, in English.
1-800-564-7099
Direct Line
1-952-583-5735
We are also known as the Scleroderma from A to Z web site.
© Copyright 1998-2009 International Scleroderma Network
All Rights Reserved