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Gingy: Localized Scleroderma
Italy

Purple Cineraria by Sherrill Knaggs, ISN ArtistIn September 2006 I was told that I might have localized scleroderma after I discovered dark marks and my skin hardened in my left forearm.

I hydrated the area for about three months, and took cortisone in 15 mg per month. On my next check-up they said it might just be dyschromia.

Because of this diagnosis I stopped the cortisone treatment. However, not even a month afterwards, I found that my arm was in its initial condition, perhaps even worse. On top of this, under my mammary arc, just above the heart, I have this stinging sensation, that gets worse if I inhale. This is a sporadic event, but lately it has happened more frequently.

I hope somebody can help me. Thank you.

To Contact the Author
Gingy
Email: metalfuschia@alice.it
Story edited 03-12-07 JTD
Story posted 04-12-07 SLE

ISN Senior Artist: Sherrill Knaggs
Story Translator: Alba León
Story Editor: Judith Thompson Devlin
LINKS
(Italiano) Gingy: Sclerodermia Localizzata
ENGLISH:
Localized Scleroderma: Morphea
Morphea Stories
Medical: Diseases and Symptoms
Scleroderma Experts (Worldwide)
Sclero Forums
Symptoms of Scleroderma
Types of Scleroderma
What is Scleroderma?
ISN Artist: Sherrill Knaggs (In Loving Memory)
Sherrill Knaggs Sherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.
ISN Translator and Editor: Alba León
Alba Leon, ISN TranslatorAlba León is the ISN Translator for this page. She is studying international relations in Mexico City.
ISN Story Editor: Judith Thompson Devlin
Judith Rose ThompsonJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series !
New Personal Stories
Alana: Scleroderma (Peru) I cannot open my mouth completely, I have lost strength in my hands, I have breathing problems, my face looks different, my skin is really tight and I have lost my appetite...
(Español/Spanish) Alana: Paciente Nuevo con Esclerodermia (Peru) Le dije que ya no podía abrir la boca completamente, he perdido la fuerza de las manos, tengo problemas respiratorios, mi rosto está diferente, mi piel está dura y he perdido casi el apetito...
Kristy C: Generalized Morphea The only place where I do not have any morphea is my face, which I am very thankful for...
(Update) Raymond: Surviving Son of Scleroderma Patient On October 19th, the Herbert family lost another member of the family to scleroderma. My uncle Edmond has passed on...
Sharon H: Scleroderma/Morphea It has been thirty-two years living with this and it has progressively gotten much worse and has spread...
Teena: En Coup De Sabre My mother and I went to Johns Hopkins Hospital. They did what was called 'Grand Rounds' where about fifty doctors were looking at me taking pictures and videotaping me...
More New Stories: November 2008
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