(English) Giò: Progressive Systemic Scleroderma

(Italiano) Giò: Sclerodermia sistemica progressiva

I have been suffering from scleroderma since 1990.

Currently, I take nifedipine, cortisone, aspirin, and calcium. For ten months of the year, I have infusions of Iloprost (prostacyclin) for three days per month, which I have to say has helped me a lot.

One needs to be steadfast and never lower one's guard. I thank all those people who help me to do my routine things every day.

To Contact the Author

Giò
New email address needed 08-06-09 SLE
Old Email Prefix: amatulla
Story posted 7-26-01
Story edited 3-28-02
English translation posted 6-18-02
Story Edited 7-28-03 JTD/V1

Story Artist: Shelley Ensz
Story Editor V1: Judith Devlin
StoryTranslator: Kevin Howell

LINKS
(Italiano) Giò: Sclerodermia sistemica progressiva
(Italiano) SCLERO.ORG
(English) Scleroderma
Voices of Scleroderma Volume 1

This Story is Featured in Voices of Scleroderma Volume 1

The story on this page is featured in the top-notch Voices of Scleroderma Volume 1 which features articles by top scleroderma experts, including Dr. Joseph Korn, as well as 100 true patient and caregiver stories from this website! The book delivers excellent information and support for scleroderma patients and caregivers. It's a great way to inform family and friends about scleroderma, too!

ISN Story Editor: Judith Thompson Devlin

Judith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

ISN Translator: Kevin Howell

Kevin Howell is the ISN Translator (Italian to English) for this story. He is a Clinical Scientist for Professor Black at the Royal Free Hospital in London.

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(Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia...

(Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was...

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More New Stories: August-November 2009

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