I'm a 53 year old woman. When I was 21 my illness began, my fingers turned white and I had pain in my bones. The diagnosis was Raynaud's Syndrome and I was cured with vasodilators.

The situation in my hands got worse, and I couldn't take the pain, even when I just touched objects lightly. So I had a medical check and I was diagnosed 'Mixed Connective Tissue Disease related to Scleroderma '. Therefore I began an infusional therapy with ' Iloprost' with cycles of 10 days (6 hours of daily treatment) every four months. I saw an improvement, especially with my mobility problems, the calcifications in my fingers slowly diminished, but the gastric disorders remained, I also had plate-like calcifications on the inside of my knees, and some smaller ones in my elbows. They also did a a mammogram, and they found small calcifications. I get tired easily and I am not sure if this is because of the illness.

In my opinion, the doctors at the hospital where I have my therapy don't know much about the illness, and the only tests they run are blood tests for antibody research, every once in a while a capillaroscopy, and an electrocardiogram before each therapy. I don't think this is enough, also because I don't know my progress and how my other organs are doing.

But then I think, if this is the cure, what's the use in knowing it? At least I lead a calm life. I should say that, in spite of everything, I would consider I have a good quality of life. I only have a breakdown when I have to go to therapy (on the 30th day is the begining of the cycle) and when my fingers hurt (like right now), I scream in pain and I am nervous, so I came online to see if there are better cures. I ask if anybody knows less invasive and stressful therapies than Iloprost and, more precisely, if anybody has gone from this therapy to a newer one. Also, which tests are normally run for the illness. Thank you.