[Skip to Content]
Patient & Caregiver Stories Main Menu
(English) Stories by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z
Stories in Other Languages: French | German | Greek | Italian | Polish | Romanian | Russian | Spanish | Turkish
Stories by Date Posted: 1999 2000 2001 2002 2003 2004 2005 2006 2007 2008 2009 2010

Ingrid: Daughter of CREST and Overlap Patient

The doctors cannot help my father.

Flowers for Ingrid by Shelley Ensz Hi, two years ago, my father was diagnosed with CREST Syndrome as well as with Overlap Syndrome.

This year my father got really ill. He suffered from two episodes of oesophageal bleeding ; in the course of the last bleed, he nearly died. Since then oesophageal varices continued to develop and new varices were found last week.

What was also observed about two years ago, was that his blood results became very bad; even taking 20mg cortisone daily, his thrombocytes are about 30,000 and his leukocytes are 2,000.

His skin has become very sensitive. Even light pressure easily causes bloody effusion as well as skin bleeding. A sticking plaster can also cause these symptoms. His rheumatologist is giving him a new basic therapy with Quensyl. Before he got worse this spring, he was given Resochin.

Two haematologists have done bone marrow biopsies and yet they were not able to make a diagnosis and have decided that CREST Syndrome is the reason for his suffering.

My father's health is getting worse and I am very worried about him. Maybe there is someone who has a similar or the same problem and this person could write to me. The doctors cannot help my father. Most of the doctors in the hospital say that they are facing a puzzle.

To Contact the Author

Ingrid
Email: Rinkenbachingrid@web.de
Story posted 12-22-02

Story Artist: Shelley Ensz
Translated from German
by Dorota Dziadzio-Kouris
LINKS
(Deutsche) Ingrid: Vater das CREST Sydrom sowie Overlap Syndrom

CREST
Difficult Diagnosis
Heartburn
Overlap Syndrome

2014 New Personal Stories

Sheri M: CREST Syndrome (Update) It has been three years since I've posted and I am happy to say I am still doing well...
More New Stories
Submit Your Patient, Caregiver or Survivor Story in:
Arabic  | Dutch  | English  | Español  | Deutsche (German)
Italiano  | Polski  | Russian  | Spanish  | Turkish  | Other Languages
We will edit your story, create original artwork to decorate it, prepare it for the web, and post it on this site. Just fill out our simple Story Submission Form for your story, updates, or email address changes.
 
Go to Irina: Polymyositis
 

SCLERO.ORG is operated by the International Scleroderma Network, which is a full-service U.S. nonprofit 501(c)(3) established in 2002. We provide stellar worldwide research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. Donate or Shop Now.

Questions? Post a message in Sclero Forums or email us directly at isn@sclero.org. Or call our Scleroderma Hotline (English only), Toll Free in U.S. 1-800-564-7099 or Direct at 1-952-831-3091. Ask for our Welcoming Email.

Our headquarters postal mailing address is: International Scleroderma Network (ISN), 7455 France Ave So #266, Edina, MN 55435-4702, United States.

The most important thing in the world to know about scleroderma...is sclero.org!
Home   Medical   News   Sclero Forums   Support   Translations  Donate or Shop
Copyright 1998-2014, International Scleroderma Network. AKA Scleroderma from A to Z and SCLERO.ORG. All Rights Reserved.