| Janet: Mixed Connective Tissue Disease | ||||||||
| I feel like I am slowly dying, my whole body hurts. | ||||||||
I was also diagnosed with fibromyalgia about five years ago. Since November 11, 2005, I have felt like I am slowly dying. My whole body hurts. My muscles in my legs, elbow and hip joints hurt all the time. Some of my medications help and some do not. I keep thinking this cannot last forever! I have read that some people go into remission with their autoimmune diseases. I have a twin sister who has lupus, so we talk a lot about our aches and pains. I will be fifty-two next month but feel like I am seventy. I have a really great husband of twenty-six years, but I cannot talk to him about my pain or I try not to. I know he gets tired of hearing about the new pain all the time! I have read some of the stories on this site and they sound so familiar to mine! I need someone to really understand how I feel. My husband is a pharmacist and he tries to keep up with any new medicine. I am a retired nurse but have started a soap and candle business. We all need something to take our mind off of our disease. I am afraid of getting addicted to pain medication, so I do not take them unless I really have to. If there is something I really want to do, I take a pain pill and just go! Maybe not the best idea but the pain medication does help me live my life. I am sure that if I did not take pain medication, I would just be in bed all day. Thanks for listening, my family gets tired of hearing it. Good luck to all of you. | ||||||||
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