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Earn $150 on July 30th in Boston Marketing Research Study if you have scleroderma or CTD and have been screened for pulmonary hypertension!
Frog jumping for joy by Shelley EnszPDF Flyer: Boston Marketing Research Study. Schlesinger Associates-Boston, a national marketing research company, is currently looking for patients who have been diagnosed with Scleroderma or other Connective Tissue Disease, who either have pulmonary hypertension or who are regularly screened for it, to participate in a July 30th paid marketing research study in Boston. Read PDF Flyer: Boston Marketing Research Study or call Katherine at 617-542-5500 x310. Schlesinger Associates-Boston. Posted 07/26/10.
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Jennie: Morphea

The worst part of these six years
has been the effect that it has had on my self-esteem.

Purple Butterfly for Jennie by Ione Bridgman, ISN Artist I was sitting in class one day in the seventh grade, and a boy next to me looked at me and loudly exclaimed, "What is on your neck?!" I had no idea what he was talking about until I went to the bathroom and looked in the mirror. I saw a large patch of white skin on my neck. I was so scared and embarrassed that I did not tell anyone.

Since then I always wore my hair down to hide it. It was a month later when my mom saw it. She immediately took me to the doctor. The first doctor had no idea what it was and recommended a dermatologist. That doctor diagnosed me with morphea.

I have spent six years with an ugly white rash on my neck. During those six years, the doctor experimented with different treatments including tetracycline, cortisone, both topical and injection, pimecrolimus cream, and he even tried a laser removal.

The worst part of these six years has been the effect that it has had on my self-esteem. I can barely go a week without someone asking me what's wrong with my neck.

It is so embarrassing. I always keep my hair long and try to hide it. I hate it and I wish it would go away.

To Contact the Author
Jennie
New email address needed 08-15-06 SLE
Old Email Prefix: jennieiscool

Story Artist: Ione Bridgman
Story Editor: Saba Sadiq
LINKS
Juvenile Scleroderma
Morphea Scleroderma
ISN Artist: Ione Bridgman
Ione Bridgman ISN Artist Ione Bridgman created original artwork to illustrate this page. She is 90 years old, and lives in New Zealand. Her lovely paintings illustrate many of our pages and the covers of our Voices of Scleroderma Book Series.
ISN Story Editor: Saba Sadiq
Saba SadiqSaba Sadiq is the ISN Story Editor for this story.
New Personal Stories
Mars: Scleroderma with Full Gastrointestinal Involvement I finally started total parenteral nutrition (TPN, or tubal feeding) in May 2010 and it was an absolute success...
Sonya D: Surviving Daughter of Systemic Scleroderma Patient (Portugal) She had difficulty eating, drinking and digesting her food, but yet doctors had no clue...
Hazel: Morphea Scleroderma In 1962 when I was just twelve years old, my mother took me to our family doctor with what looked like a blister under my right eye...
Angela R: Linear Morphea Scleroderma I am twenty-five now and only have the two spots that I deal with pretty easily. I just hope it doesn't get worse...
Heather A: Scleroderma (South Africa) My fingers started to curl up and I could not wear any rings on my fingers anymore as they were so swollen...
More New Stories: May-July 2010
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Go to Jennifer: Surviving Daughter of Overlap Syndrome Patient
 
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