Over 2,200+ pages in 22 languages!
 
Patient & Caregiver Stories Main Menu
(English) Stories by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z
All Stories by Date Posted: 1999 2000 2001 2002 2003 2004 2005 2006 2007 2008
Stories by Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms
Stories by Language: French | German | Greek | Italian | Polish | Romanian | Russian | Spanish | Turkish
Judy King: CREST Syndrome
I do not worry about my future, I just take one day at a time.

Morning Glory for Judy by Shelley Ensz Hi, my name is Judy King and I was first diagnosed with scleroderma in November 1997. However, I first noticed my fingers turning white during very cold weather in 1993, and through my own research, I diagnosed myself with Raynaud's.

When I was diagnosed in 1997, it was because my middle finger on my right hand become infected on the tip and just under the nail. My family doctor treated it with several antibiotics which did not help. Then, he decided to do a blood test to rule out lupus, which it did, but instead it showed I have scleroderma.

My finger became progressively worse until in March 1998 I was told that amputation was necessary. My rheumatologist referred me to a neurosurgeon who performed a digital sympathectomy on my right hand and, thank God, my finger was saved.

I have esophageal difficulties, including swallowing, GERD, severe heartburn, and problems with different foods. Pain all over my body is my constant companion because of scleroderma, and I also have 7 herniated discs in my lower back.

I have just recently had to quit work and file for my Social Security Disability. I do not worry about my future, I just take one day at a time.

To Contact the Author
Judy King
New email address needed.
Old Email: judyk@jcn.net
Story posted 5-10-01
Email note posted 01-20-05 SLE

Story Artist: Shelley Ensz
LINKS
Amputation
Digital Sympathectomy
Difficulty Swallowing (Dysphagia)
GERD
Lupus
Raynaud's
Scleroderma
New Personal Stories
Alana: Scleroderma (Peru) I cannot open my mouth completely, I have lost strength in my hands, I have breathing problems, my face looks different, my skin is really tight and I have lost my appetite...
(Español/Spanish) Alana: Paciente Nuevo con Esclerodermia (Peru) Le dije que ya no podía abrir la boca completamente, he perdido la fuerza de las manos, tengo problemas respiratorios, mi rosto está diferente, mi piel está dura y he perdido casi el apetito...
Kristy C: Generalized Morphea The only place where I do not have any morphea is my face, which I am very thankful for...
(Update) Raymond: Surviving Son of Scleroderma Patient On October 19th, the Herbert family lost another member of the family to scleroderma. My uncle Edmond has passed on...
Sharon H: Scleroderma/Morphea It has been thirty-two years living with this and it has progressively gotten much worse and has spread...
Teena: En Coup De Sabre My mother and I went to Johns Hopkins Hospital. They did what was called 'Grand Rounds' where about fifty doctors were looking at me taking pictures and videotaping me...
More New Stories: November 2008
Submit Your Patient, Caregiver or Survivor Story in:
Arabic  | Dutch  | English  | Español  | Deutsche (German)
Italiano  | Polski  | Russian  | Spanish  | Turkish  | Other Languages
We will edit your story, create original artwork to decorate it, prepare it for the web, and post it on this site. Just fill out our simple Story Submission Form for your story, updates, or email address changes.
Keep on Surfing!
Go to Judy Tarro: Diffuse Scleroderma
Contact ISN. We are a full-service nonprofit agency.
Email: isn@sclero.org or
Post in Sclero Forums!
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702
USA
Toll Free Hotline in U.S.
1-800-564-7099
Direct Line
1-952-831-3091 (U.S.)
(We are also known as the Scleroderma from A to Z web site.)
© Copyright 1998-2008 International Scleroderma Network
All Rights Reserved