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Judy King: CREST Syndrome

I do not worry about my future, I just take one day at a time.

Morning Glory for Judy by Shelley Ensz Hi, my name is Judy King and I was first diagnosed with scleroderma in November 1997. However, I first noticed my fingers turning white during very cold weather in 1993, and through my own research, I diagnosed myself with Raynaud's.

When I was diagnosed in 1997, it was because my middle finger on my right hand become infected on the tip and just under the nail. My family doctor treated it with several antibiotics which did not help. Then, he decided to do a blood test to rule out lupus, which it did, but instead it showed I have scleroderma.

My finger became progressively worse until in March 1998 I was told that amputation was necessary. My rheumatologist referred me to a neurosurgeon who performed a digital sympathectomy on my right hand and, thank God, my finger was saved.

I have esophageal difficulties, including swallowing, GERD, severe heartburn, and problems with different foods. Pain all over my body is my constant companion because of scleroderma, and I also have 7 herniated discs in my lower back.

I have just recently had to quit work and file for my Social Security Disability. I do not worry about my future, I just take one day at a time.

To Contact the Author

Judy King
New email address needed.
Old Email Prefix: judyk
Story posted 5-10-01
Email note posted 01-20-05 SLE

Story Artist: Shelley Ensz
LINKS
Amputation
Digital Sympathectomy
Difficulty Swallowing (Dysphagia)
GERD
Lupus
Raynaud's
Scleroderma

New Personal Stories

We are revising our personal story submission program. If you would like to post or update an existing story on our site, please email isn@sclero.org.
Sheri M: CREST Syndrome (Update) It has been three years since I've posted and I am happy to say I am still doing well...
 
Go to Judy Tarro: Diffuse Scleroderma
 

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