| Stories
in English: K |
| Kappy:
Sister of Diffuse Scleroderma Patient So now,
I offer my sister's story with the belief that it too
will inspire the same hope I once found... |
| Karen:
Mother of Generalized Guttate Morphea Patient I
was so pleased to come across this web site to share
our story... |
| Karen
A: Morphea Scleroderma I am a 34-year-old female
who has been bounced around for 2-1/2 years from oncologists
to rheumatologists... |
| Karen C: Daughter of Diffuse Scleroderma Patient I am thirty years old and I live
in Chile. My father is Juan, he's fifty-two and suffers
from diffuse scleroderma... |
| Karen
G: Spouse of Scleroderma Patient My husband
has scleroderma and we would like to know if anyone
has ever had an Iloprost infusion... |
| Karen
H: Eosinophilic Fasciitis I am experiencing
extreme fatigue and muscle pain on a daily basis... |
| Karen
M.R.: Diffuse Scleroderma and Fibromyalgia I
was so glad she was there, because I sort of went into
shock when the doctor said she was going to start me
on chemo treatments... |
| Karen
T: Daughter of Progressive Systemic Scleroderma Tubal
feeding does not look scary, and it is not the beginning
of the end; instead, it is a new beginning for her... |
| Karina:
Mother of Morphea Patient The doctor says it
will be under control, and that it is a good thing
that it is localized and hasn't spread... |
| Kasey:
Daughter of a Diffuse Scleroderma Patient The
hardest part for my mother is accepting that she does
have scleroderma and needs to face the facts about
it... |
| Kasra:
Son of Morphea Scleroderma Patient (Iran) Please
help me. The doctor that we went to in 1990 is now
dead, and the doctors in Iran do not have much information
about this kind of disease... |
| Kate:
Possible Scleroderma/Lupus Overlap At some point
in that dreary winter month, I began waking up with
swollen hands... |
| Kath:
Systemic Sclerosis (Scleroderma) Moving to Spain
has had a positive effect on my Raynaud's, but has
had no effect, so far as I am aware, on my scleroderma... |
| Kathi:
Scleroderma/Lupus I am forty-three years old
and have not been feeling well for ten years... |
| Kathleen
S: Eosinophilic Fasciitis I noticed that winter
during gym, that when we did push-ups, I had to do
knuckle push-ups because I could not straighten my
fingers... |
| Kathy
Baker: CREST Scleroderma (Houston, Texas) This
disease has been a roller coaster ride both emotionally
and physically, but I know it could be worse... |
| Kathy
Gaither: Mother of Juvenile Scleroderma Patient I
decided that I was going to turn our negative experience
with scleroderma into something positive for us and
for other parents... |
| Kathy
GR: Scleroderma Patient The doctor who had been
doing the nerve blocks had told me I had scleroderma,
but never mentioned that I needed to see a rheumatologist... |
| Kathy
M: CREST (Limited Systemic Scleroderma) If you
do not have the right doctor, do not get furious, move
on... |
| Kathy
P: Localized Scleroderma I was diagnosed with
Focal or Localized Scleroderma (Juvenile Scleroderma)
at the age of eighteen months... |
| Kathy
R: Localized Scleroderma I was diagnosed with
Localized Scleroderma when I was six months pregnant
with my son in 1965. It started at the time with blotches
on my right arm... |
| Katie:
Morphea I developed morphea on my lower abdomen
around the time I was twelve years old... |
| Katie
P My dad is forty-three years old and he has
been diagnosed with the rare kind of this disease... |
| Katie
W: Morphea The worst part for me is that because
I do not have a very severe case of it, I sometimes
feel like it is not real... |
| Katy:
Morphea Scleroderma It took nearly a year to
get my diagnosis. The first two doctors told me I had
ringworm... |
| Kaycee:
Diffuse Scleroderma with Polymyositis The rheumatologist
confirmed the diagnosis of diffuse scleroderma on my
initial visit to him. Since then, I have had a muscle
biopsy, which confirmed polymyositis... |
| Keenan:
Surviving Son of Fibrosing Alveolitis Patient Dad
passed away now almost 4 years ago. It still hurts
knowing that I will never be able to ask his advice
or listen to his corny jokes again... |
| Keith:
Surviving Son of Scleroderma Patient In the
fall of 1982 my mom was diagnosed with this dreadful
disease and it caused kidney failure... |
| Keith
H: Eosinophilic Fasciitis (EF) I have a rare
skin disease called eosinophilic fascitiis, a skin
and muscle disease which causes tightness of the skin,
and sometimes a reddish coloration of the skin in areas... |
| Kelli:
Morphea Scleroderma I am a twenty-six-year-old,
married, mother of two girls in Texas. I was diagnosed
with Morphea in the first grade... |
| Kellie:
Overlap Scleroderma and Mixed Connective Tissue Disease
(MCTD) I am so relieved to read about so many
people who have had the same experiences... |
| Kendall:
Morphea Scleroderma In August 2001, I found
a small purple thing on my hip... |
| Keri:
Undiagnosed I have been living with back pain,
stomach problems and skin problems since I was a teen... |
| Kerrie:
CREST Syndrome with Limited Scleroderma If I
was not stressed before I went in, I certainly was
then. I am going to get referred on to see someone
different. Hopefully, I will be luckier second time
around... |
| Keua:
Possibly Scleroderma I finally decided to see
my doctor when I could not even straighten my fingers
without pain and discomfort and was feeling extremely
lethargic... |
| Kevin:
Undiagnosed Scleroderma, Lupus, Mixed Connective Tissue
Disease, Rheumatoid Arthritis, etc.? All I do
is live, sleep and breathe the pain in my hand... |
| Khai:
Mother of Diffuse Progressive Systemic Sclerosis Patient From
that time until now, scleroderma has dictated our lives.
The disease has attacked all lobes of the lungs on
the right side... |
| Kiara:
Morphea Scleroderma (Italy) My name is Kiara,
I am 19 years old and I have had Localised Scleroderma
(Morphea) for 14 years... |
| Kichy:
Morphea Scleroderma I am a thirty-four year
old professor at the Autonomus University of Chihuahua.
A month ago, I was diagnosed with localized morphea... |
| (Spanish)
Kichy: Esclerodermia Morfea Tengo 34 años
de edad y soy profesora en la Universidad Autonoma
de Chihuahua. Hace un mes fui dignosticada con esclerodermia
morfea... |
| Kimmy:
Morphea My morphea started off as a little bump
on my stomach. So I went to a surgeon and he said that
is not a cyst, it is a disease... |
| Klaas:
Scleroderma Graft-vs-Host Disease (GVHD) So
I would like to know if, and when, I will be able to
walk again... |
| Kon:
Lichen Sclerosus et Atrophicus The doctor told
me to use tacrolimus ointment and take plaquenil pills.
I had an improvement the first two months, but the
condition still remains... |
| Krisha
S: Multiple Autoimmune Condition I have multiple
sclerosis (MS), fibromyalgia, and Stiff Person Syndrome... |
| Krissy:
Systemic Scleroderma/Stem Cell Transplant Patient Our
home is like a hospital. We have oxygen tanks for when
I need extra help breathing, and a lovely kangaroo
pump which is how I get my continuous feeding... |
| Krista:
Scleroderma, Polymyositis, Vasculitis Many of
you probably know that I have translated "Scleroderma
from A to Z" into my language, Romanian... |
| Krista:
My Caregiver's Story All those years beside
him, seeing him suffering, being frustrated about the
fact that I could not do anything to help him... |
| Kristen:
CREST Scleroderma I thought I was going crazy.
I did not know whether to cry over the diagnosis or
feel relieved that I was not crazy... |
| Krys:
Morphea Scleroderma I am still not comfortable
with the scar but I have been free of scleroderma for
quite some time... |
| K.
Thompson: Daughter of Scleroderma Patient He
had been having problems with his heart and had to
have stents put in for blocked arteries... |
| Kym:
Diffuse, CREST Scleroderma, Lupus and Fibromyalgia It
all started with Raynaud's in my fingers and toes when
I was about nineteen years old, in 1979... |
| Kym P: Morphea It
started almost seven years ago, when I developed an odd looking bruise about the size
of a quarter on my shin. The next couple of years it slowly changed... |
|
