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K Thompson: Daughter of Scleroderma Patient
My father is going to a scleroderma specialist now.

Bunny Wreath by Shelley Ensz Hello! My father was diagnosed with scleroderma in January 1997. He had been having problems with his heart and had to have stents put in for blocked arteries. This is when the doctors found this condition.

He has the greatest faith of anyone I know. He never complains about anything, although I know he feels ill a lot

He was born and raised in Brewton, Alabama. He has done a variety of work throughout his life. He has been a welder and painter. He now suffers mostly in his neck, arms, and knees. He lays around a lot of his time. It took about six months for the doctors to diagnose him completely. He is now fifty-five years old and on disability.

He is going to a scleroderma specialist now and having more blood work done. His throat has been bothering him for some time.

Anyone interested in contacting us, please feel free. We would love to hear from you and find out about your story. Please keep us in your prayers and never ever give up! Godspeed!

To Contact the Author
K. Thompson
New email needed 09-26-06 SLE
Old Email: Kelseyt7@cs.com
Story posted 1-20-01
Story edited 7-27-03 SLE

Story Artist: Shelley Ensz
LINKS
Difficult Diagnosis
Gulfcoast Scleroderma Support Group
Heart Involvement
Scleroderma Specialists
Throat (G.I. Involvement)
Types of Scleroderma
New Personal Stories
Mila: Morphea Now I am twenty-five years old, and that spot has grown throughout my right leg and on one side of my belly button...
(Español/Spanish) Mila: Morfea Hoy en día tengo 25 años y esa mancha está en toda mi pierna derecha y al lado de mi ombligo...
(Español/Spanish) (Update) Jeins: Esclerodermia Sistemica Difusa y Dermatopolimiositis Ya había escrito mi historia hace 3 años cuando recién estaba pasando por la enfermedad. Para quienes no lo saben tengo esclerodermia y dermatomiositis desde los 19 años.
Alana: Scleroderma (Peru) I cannot open my mouth completely, I have lost strength in my hands, I have breathing problems, my face looks different, my skin is really tight and I have lost my appetite...
(Español/Spanish) Alana: Paciente Nuevo con Esclerodermia (Peru) Le dije que ya no podía abrir la boca completamente, he perdido la fuerza de las manos, tengo problemas respiratorios, mi rosto está diferente, mi piel está dura y he perdido casi el apetito...
Kristy C: Generalized Morphea The only place where I do not have any morphea is my face, which I am very thankful for...
(Update) Raymond: Surviving Son of Scleroderma Patient On October 19th, the Herbert family lost another member of the family to scleroderma. My uncle Edmond has passed on...
More New Stories: November 2008
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