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K Thompson: Daughter of Scleroderma Patient

My father is going to a scleroderma specialist now.

Bunny Wreath by Shelley Ensz Hello! My father was diagnosed with scleroderma in January 1997. He had been having problems with his heart and had to have stents put in for blocked arteries. This is when the doctors found this condition.

He has the greatest faith of anyone I know. He never complains about anything, although I know he feels ill a lot

He was born and raised in Brewton, Alabama. He has done a variety of work throughout his life. He has been a welder and painter. He now suffers mostly in his neck, arms, and knees. He lays around a lot of his time. It took about six months for the doctors to diagnose him completely. He is now fifty-five years old and on disability.

He is going to a scleroderma specialist now and having more blood work done. His throat has been bothering him for some time.

Anyone interested in contacting us, please feel free. We would love to hear from you and find out about your story. Please keep us in your prayers and never ever give up! Godspeed!

To Contact the Author
K. Thompson
New email address needed 09-26-06 SLE
Old Email Prefix: Kelseyt7
Story posted 1-20-01
Story edited 7-27-03 SLE

Story Artist: Shelley Ensz
LINKS
Difficult Diagnosis
Gulfcoast Scleroderma Support Group
Heart Involvement
Scleroderma Specialists
Throat (G.I. Involvement)
Types of Scleroderma
New Personal Stories
Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end...
(Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia...
(Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was...
Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information...
More New Stories: August-November 2009
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