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Karligash: Systemic Scleroderma
Level 5, level 3 activity, stage 3, affecting skin, joints, intestines, lungs, kidneys, Raynaud's syndrome.
Severe Iron/Mixed deficiency anemia (iron and B12 deficiency)

Patio Flowers by Shelley EnszYoung, beautiful, full of hope and expectations for my life, for happiness and love — that was me, 19 years of age. And then scleroderma destroyed it all. Doctors couldn't figure out what was wrong with me for nearly a year, all the while I was getting worse by the hour. Only when it got so bad that I couldn't even brush my hair and needed to be helped to the bathroom, they finally diagnosed me.. They gave me a big dose of prednisolone right away and that saved my life.

I am 31 now — disfigured, old woman, mad at the world, just living out the rest of my life in these four walls.

Hope dies last, could it be that the cure have been found for Systemic Scleroderma now?

To Contact the Author
Karli
Email karlygash_isaeva@mail.ru

Story Translated by Igor Makarov 06-24-09
Story posted 06-26-09 SLE

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Карлыгаш: системная склеродермия
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New Personal Stories
Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end...
(Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia...
(Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was...
Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information...
More New Stories: August-November 2009
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