Patient & Caregiver Stories Main Menu
(English) Stories by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z
All Stories by Date Posted: 1999 2000 2001 2002 2003 2004 2005 2006 2007 2008
Stories by Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms
Stories by Language: French | German | Greek | Italian | Polish | Romanian | Russian | Spanish | Turkish
Keith: Surviving Son of a Scleroderma Patient
Tomorrow is not promised...

Mary's Hanging Plant by Shelley Ensz In fall of 1982 my mom was diagnosed with this dreadful disease and it caused kidney failure. My mom had a kidney transplant in February of 1988.

I was stationed in Korea but was able to be home in Miami the day after the transplant. Then in the summer of 1994, her kidneys failed again.

After that incident my mom was able to carry on a productive life but her illness continued to get worse, so in January of 1996 I decided to move from Baltimore, Maryland, back to Miami, Florida so that I could look after her in her time of need, giving up everything for her.

I have enjoyed the last three years we were able to spend with each other. Being a single mother raising one child, she raised very well. After entering the hospital on February 15, 1999, she was diagnosed with lung problems, but due to the scleroderma her blood pressure could not be maintained by her own body. My mom passed away of respiratory failure on February 25, 1999, four days after my 33rd birthday.

Luckily I was able to share this time with her and I thank God for that. The thing that hurts the most is that she will never be able to meet her first grandchild, who is due on May 26th of 1999.

Star
In Loving
Memory of
My Mom

Star

So tell that special person how much you love them if you have not done so because tomorrow is not promised. I was lucky to tell her how much I loved her. My mother was the best friend and the best parent that anyone could ever have.

Mom, your memory will never be forgotten. I thank you for everything that you have done for me.Your ever loving son, Keith.

To Contact the Author
Keith
Email: AGOOCH3945@AOL.COM
Story posted 3-19-99
LINKS
Kidney Failure
Lung Involvement
Scleroderma Survivors Stories
New Personal Stories
Donna: CREST, Raynaud's, possible Fibromyalgia I was diagnosed with CREST (Limited Systemic Scleroderma) by a rheumatologist in 2006. This wasn't really a surprise to me as my mother was diagnosed with diffuse scleroderma in 1998...
Jessica G: Parry-Romberg Syndrome By the time I was about five years old, the disease had already disfigured my left side drastically. I have had over fifty operations and surgical procedures for Romberg's....
Leslie R: Scleroderma, Vitiligo, Lupus, Anemia, Hypertension and Type 2 Diabetes He told me that I have scleroderma and explained what this disease is about. After suffering so long I finally got some answers...
More New Stories: Feb-August 2008
Submit Your Patient, Caregiver or Survivor Story in:
Arabic  | Dutch  | English  | Español  | Deutsche (German)
Italiano  | Kannada  | Polski  | Russian  | Spanish  | Turkish  | Other Languages
We will edit your story, create original artwork to decorate it, prepare it for the web, and post it on this site. Just fill out our simple Story Submission Form for your story, updates, or email address changes.
Keep on Surfing!
Go to Keith H: Eosinophilic Fasciitis (EF)
Contact ISN. We are a full-service nonprofit agency.
Email: isn@sclero.org or
or post a message in our Sclero Forums !
Shop, Join or Donate Now
(Also see: Contact ISN )
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702
USA
Toll Free Hotline in U.S. 1-800-564-7099
Direct Line 952-831-3091 (U.S.)
(We are also known as the Scleroderma from A to Z web site.)
© Copyright 1998-2008 International Scleroderma Network
All Rights Reserved