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Kiara: Morphea Scleroderma
A great victory after so many years of suffering!

Magnolia Flowers by Ione Bridgman, ISN Artist My name is Kiara, I am 19 years old and I have had Localised Scleroderma (Morphea) for 14 years. In all this time I seem to have done nothing more than "jump" from one hospital to another! I was at the Santa Chiara Hospital in Pisa, where they “tortured” me with cortisone injections. Finally, after almost four years of treatments, my last hope arrived in the form of the "De Marchi" Hospital in Milan. Here the doctors managed to stop the disease, which is a great victory after so many years of suffering!

Email Kiara

Kiara
New email address needed.
Old Email: chiarabarbato@hotmail.com
Italian story edited 7-23-02
Story posted in English: 12-3-02
Email note posted 01-18-05 SLE

Story Artist: Ione Bridgman
LINKS
Sclerodermia dalla A alla Z
(Italianio) Kiara: Morphea
(Italiano) Morphea Sclerodermia
ISN Translator: Kevin Howell
Kevin Howell is the ISN Translator (Italian to English) for this story. He is a Clinical Scientist for Professor Black at the Royal Free Hospital in London.
ISN Artist: Ione Bridgman
Ione Bridgman ISN Artist Ione Bridgman created original artwork to illustrate this page. She is 90 years old, and lives in New Zealand. Her lovely paintings illustrate many of our pages and the covers of our  Voices of Scleroderma Book Series .
New Personal Stories
Alana: Scleroderma (Peru) I cannot open my mouth completely, I have lost strength in my hands, I have breathing problems, my face looks different, my skin is really tight and I have lost my appetite...
(Español/Spanish) Alana: Paciente Nuevo con Esclerodermia (Peru) Le dije que ya no podía abrir la boca completamente, he perdido la fuerza de las manos, tengo problemas respiratorios, mi rosto está diferente, mi piel está dura y he perdido casi el apetito...
Kristy C: Generalized Morphea The only place where I do not have any morphea is my face, which I am very thankful for...
(Update) Raymond: Surviving Son of Scleroderma Patient On October 19th, the Herbert family lost another member of the family to scleroderma. My uncle Edmond has passed on...
Sharon H: Scleroderma/Morphea It has been thirty-two years living with this and it has progressively gotten much worse and has spread...
Teena: En Coup De Sabre My mother and I went to Johns Hopkins Hospital. They did what was called 'Grand Rounds' where about fifty doctors were looking at me taking pictures and videotaping me...
More New Stories: November 2008
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Go to Kichy: Morphea Scleroderma
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