Visit Sclero Forums, Chats and Blogs!
 
Search sclero.org:
 
The most important thing in the world to know about
scleroderma is sclero.org with 5,000+ pages in 23 languages!
 
Donate in MemoryIn loving memory of Tom Regensburger, and Vera Kortan . (Donate)
Home   Medical   News   *Sclero Forums*   Support   Languages/Countries
Earn $150 on July 30th in Boston Marketing Research Study if you have scleroderma or CTD and have been screened for pulmonary hypertension!
Frog jumping for joy by Shelley EnszPDF Flyer: Boston Marketing Research Study. Schlesinger Associates-Boston, a national marketing research company, is currently looking for patients who have been diagnosed with Scleroderma or other Connective Tissue Disease, who either have pulmonary hypertension or who are regularly screened for it, to participate in a July 30th paid marketing research study in Boston. Read PDF Flyer: Boston Marketing Research Study or call Katherine at 617-542-5500 x310. Schlesinger Associates-Boston. Posted 07/26/10.
Patient & Caregiver Stories Main Menu
(English) Stories by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z
Stories in Other Languages: French | German | Greek | Italian | Polish | Romanian | Russian | Spanish | Turkish
Stories by Date Posted: 1999 2000 2001 2002 2003 2004 2005 2006 2007 2008 2009 2010

Kichy: Localized Morphea Scleroderma

(Spanish) Kichy: Esclerodermia Localizada, Morfea

Flowers for Kichy by Sherrill Knaggs, ISN Artist I am a thirty-four-year-old professor at the Autonomus University of Chihuahua.

A month ago, I was diagnosed with localized morphea. Due to this diagnosis, I am having second thoughts about having another child, which I want so much. At present, I have a one-year-old baby girl. I am weighing the pros and cons on this topic because of the disease I have been diagnosed with.

The dermatologist that I have been seeing, came up with this diagnosis after doing a skin biopsy which resulted positive to scleroderma. All I can recall about the conversation with my doctor was that I had scleroderma morphea.

It all started when I began noticing red blemishes on my forearms, which sometime later turned hard and changed in color, somewhat lighter than the natural color of my skin. Although I have not felt any additional effects because of this illness, I have noticed new blemishes on my waistline and on my calves. These have remained red up until now.

My doctor has made me go through many lab tests, but up until now, everything has turned out negative. Seeing this, I have not taken my doctor's diagnosis too seriously.

At present, my doctor has me on a cream by the name of Visderm-H at 1%, Colchicina, and a antibiotic, because she believes that I have a bacteria hidden in my body known as 'Borrelia', but the lab tests have always shown that I am okay.

Although my family is worried about my condition, I have faith that everything will turn out well, and I believe that if I have this disease it is because God has a mission for me. All I ask God for is to give me the strength I need to face this illness. If anyone out there has any suggestions or recommendations, please contact me; I will be eternally appreciative.

To Contact the Author
Kichy
Email: kichyrfz@yahoo.com
Story posted 9-26-03

ISN Senior Artist: Sherrill Knaggs
Story Translator: Edwin Lamoli-Torres
Story Editor: Judith Devlin
LINKS
Autonomus University of Chihuahua
Localized Morphea
La Esclerodermia desde la A hasta la Z (Spanish)
Historia Kichy (Spanish)
ISN Artist: Sherrill Knaggs (In Loving Memory)
Sherrill KnaggsSherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.
ISN Translator: Edwin Lamoli-Torres
Edwin Lamoli-Torres is the ISN Spanish Translator for this story. He is a retired professor from the University of Puerto Rico at Mayaguez, where he taught English as a second language.
ISN Story Editor: Judith Thompson Devlin
Judith Rose ThompsonJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!
New Personal Stories
Mars: Scleroderma with Full Gastrointestinal Involvement I finally started total parenteral nutrition (TPN, or tubal feeding) in May 2010 and it was an absolute success...
Sonya D: Surviving Daughter of Systemic Scleroderma Patient (Portugal) She had difficulty eating, drinking and digesting her food, but yet doctors had no clue...
Hazel: Morphea Scleroderma In 1962 when I was just twelve years old, my mother took me to our family doctor with what looked like a blister under my right eye...
Angela R: Linear Morphea Scleroderma I am twenty-five now and only have the two spots that I deal with pretty easily. I just hope it doesn't get worse...
Heather A: Scleroderma (South Africa) My fingers started to curl up and I could not wear any rings on my fingers anymore as they were so swollen...
More New Stories: May-July 2010
Submit Your Patient, Caregiver or Survivor Story in:
Arabic  | Dutch  | English  | Español  | Deutsche (German)
Italiano  | Polski  | Russian  | Spanish  | Turkish  | Other Languages
We will edit your story, create original artwork to decorate it, prepare it for the web, and post it on this site. Just fill out our simple Story Submission Form for your story, updates, or email address changes.
 
Go to Kimmy: Morphea
 
SCLERO.ORG is brought to you by the nonprofit International Scleroderma Network (ISN). The ISN is a full-service nonprofit scleroderma charitable foundation providing stellar research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension.
  1. Post a message in Sclero Forums
  2. Email: isn@sclero.org
  3. English Email Form
  4. Español Email Form
  5. Italiano Email Form
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702
United States

This website is certified by Health On the Net Foundation. Click to verify.
This site complies with the HONcode standard for trustworthy health information: verify here.

Toll Free Hotline in U.S.
Hours: 9am-3pm CST only.
Please leave a complete message, in English.
1-800-564-7099
Direct Line
1-952-583-5735
We are also known as the Scleroderma from A to Z web site.
Privacy Policy, Financial Disclosure, and Disclaimer.
© Copyright 1998-2010 International Scleroderma Network
All Rights Reserved
 
Home   Donate   Medical   News   *Sclero Forums*   Support   Translations   Search