I don't know exactly what my type of scleroderma is, but I do know that I have been in a wheelchair for eleven months, and I don't see any progress. So I would like to know if, and when, I will be able to walk again.
Is there a way to find out if there is any hope for me? Living in these conditions is not easy, especially if you can't see the light at the end of the tunnel!
Sherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.
(Update) Dee B: Limited Scleroderma/CREST Syndrome(South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was...
Tessa: MorpheaThe nurse just told me that I have morphea and knew nothing about it and she told me to look online for information...
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SCLERO.ORG is brought to you by the nonprofit International Scleroderma Network (ISN). The ISN is a full-service nonprofit scleroderma charitable foundation providing stellar research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension.