| Stories
in English: L |
| LadyBugDi:
Acrocyanosis (now Raynaud's) I was tired of
going to the doctor and being told it was from stress... |
| Lama:
Morphea Scleroderma If anyone reads this, please
send me an e-mail and tell me anything you know about
morphea... |
| Lama
S: Morphea Scleroderma (UAE) It makes me feel
great to know that he wants to marry me and spend the
rest of his life with me as if these spots weren't
bothering him at all... |
| Lancia:
A Friend of a Morphea Patient (Italy) Some time
ago a beloved friend of mine was diagnosed with scleroderma... |
| Larella:
Mother of Son with Morphea Cody can't cover
up the scarring and he can't hide from the stares or
questions, but since he dyed his hair green... |
| Laura
C: Mother of Morphea Scleroderma Patient My
13-year-old son was diagnosed with morphea in September
2000... |
| Laura H: Mother of Son with Linear Morphea What started as a bruise in his forehead, has come down to his nose, and his
forehead has sunk a bit... |
| Laura
M: UCTD A rheumatologist told me I did not look
sick and to "get a life"... |
| Laura
S: Morphea Scleroderma It is frustrating that
there is such a lack of knowledge for this condition
and that I have had to go through the last thirteen
years with very little support from doctors... |
| Laura
W: Scleroderma, Sjögren's, Raynaud's and IBS I
am glad to finally have an answer after years of tests,
with no results... |
| Laurie
(Bioteach): CREST Syndrome My first symptoms
of this disorder began with Raynaud's when I was in
my mid twenties... |
| LaVonne:
Surviving Mother of a Daughter with MCTD My
daughter died of MCTD in March 2000, at thirty-five
years of age... |
| Lee:
Undifferentiated Connective Tissue Disease (UCTD) A
Sloan-Kettering researcher said our problems were related
to HLA-B27 inheritance... |
| Leeben:
Limited Scleroderma and CREST I won't go into
how many doctors I had to visit before someone took
me seriously; it was a total nightmare... |
| Lenor:
Polymyositis, Pulmonary Fibrosis and Raynaud's Phenomenon In
May of 1999, I was diagnosed with polymyositis and
Raynaud's phenomenon then, in March of 2001, with pulmonary
fibrosis... |
| (Dutch)
Leon: Lineair Bij mij ontdekte men op 5 jarige
leeftijd twee vlekjes op mijn linker onderarm... |
| Lesley:
CREST Scleroderma I
started choking on food. I was told it was globus. My
hands went white in the cold... |
| Liliana:
Morphea (Argentina) I have spots in my legs,
hips, back and some in my arms... |
| Lina:
Morphea Scleroderma I am twenty-five years old
and two weeks ago I was diagnosed with scleroderma.
I went to see a rheumatologist and he said my case
wasn't very important... |
| Linda:
Morphea Scleroderma I wonder if any of you who
read this, know any methods of treatment... |
| Linda
E: Mother of En Coup de Sabre and Morphea Patient Five
weeks later I noticed that the bruise was still there
so we went to a pediatrician who referred us to a dermatologist... |
| Linda
F: CREST Scleroderma, Rheumatoid Arthritis, Fibromyalgia,
Hashimoto's Thyroiditis, Hematoma, and Osteomyelitis I
need to tell you all the gory details so you can truly
understand what a miracle it is that I am alive today... |
| Linda
G: Aunt of Scleroderma Patient I had never heard
of this disease until my nephew told me my niece had
it one day and I broke down and cried as she is so
young... |
| Linda
W: Surviving Daughter of Scleroderma Patient All
she wanted was for others to learn of this disease
and know her story. She requested this about two weeks
before she died... |
| Lindsey:
Eosinophilic Fasciitis (EF) My skin remains
very thick and constricted... |
| Lindsey Z: Morphea Scleroderma I was
self conscious in fear that others would care, or find me ugly because
of it... |
| Lisa
A: Spouse of Systemic Scleroderma Patient My
husband was diagnosed in July 2000... |
| Lisa
C: Limited Scleroderma My mother has rheumatoid
arthritis (RA) and my thirteen-year-old daughter has
what is believed to be early lupus... |
| Lisa
D: Morphea Scleroderma I have had morphea scleroderma
for twenty-eight years. I first noticed it when I was
seven years old... |
| Lisa
Kate McGowan: Linear Scleroderma When I was
eighteen years old, I was diagnosed with linear scleroderma.
It changed my life because it affected my left arm
by leaving a big shiny scar... |
| Lisa
P: Undifferentiated Connective Tissue Disease (UCTD) I
have an appointment with a new rheumatologist on May
tenth. Hopefully I will get some answers... |
| Lisa
R: Difficult Diagnosis - Scleroderma? My story
started five months ago when I woke up one day and
out of nowhere, my fingers were tingling and a bit
swollen... |
| Lisa
S: Morphea Scleroderma I am nineteen now and
I am just wondering if this could get any worse and
if I should be getting it checked out more with a specialist... |
| Lisa
T: Morphea Scleroderma When I was about thirteen
years old I developed white marks around my neck where
the skin was thinner than the rest of the skin on my
body... |
| Lisa
V: Diffuse Scleroderma and Raynaud's When I
first got sick, I thought I was dying. My fingers started
hurting really bad... |
| Lisa
W: Diffuse Scleroderma, CREST and Multiple Sclerosis I
was recently diagnosed with multiple sclerosis (MS).
That also took over a year to diagnose. My doctors
tell me that I am one out of millions with this case
of bad luck... |
| Liz:
Localized Scleroderma: Morphea Over the next
eight months I was misdiagnosed by three different
doctors... |
| Lois:
Fibromyalgia with Possible CREST When I read
Carla's story it almost sounded like mine! When I was
in tenth grade, Raynaud's started and a horrible kind
of rash... |
| Louise:
Linear Scleroderma I got a bit of a fright when
I read about scleroderma affecting the organs... |
| Loretta:
Fibromyalgia My spinal doctor says it's Fibromyalgia,
the family doctor says it's my back. I am so confused... |
| Lori:
Surviving Daughter of Father who had Scleroderma We
held his hands and told him how much we loved him and
watched him take his last breath at 5:50 p.m. on September
6, 2002... |
| Lori
S: Mother of Eosinophilic Fasciitis Patient On
the second biopsy, they went further into the fascia
and confirmed the diagnosis of eosinophilic fasciitis
(EF). I would like to talk to other parents or patients
with EF... |
| Lorna:
Undiagnosed Scleroderma? When I went to the
hospital this young doctor came in and looked at my
hands. He said that he thought I had Raynaud's and
scleroderma... |
| Lorrie:
Limited Scleroderma/CREST At first I thought, "Oh
my goodness! I am going to die." But my doctor
assured me that I could very likely live to be an old
woman... |
| Lu:
Sjogren's Syndrome (Italy) I have migrant polyarthritis
and enormous digestive problems... |
| Luis:
Son of Scleroderma Patient (Spain) I believe
my mother’s illness was caused by the depression she
suffered due to the death of my thirteen year old brother... |
| Lulu:
Lupus and CREST Scleroderma I thought that I
was getting lazy. It took all I could do to just get
through the day... |
| (Italiano)
Lupo: Sclerodermia con Sindrome di Raynaud Ringrazio
tutto lo staff medico che mi ha diagnosticato la sclerodermia... |
| Lyn:
Systemic Sclerosis I thought my life was ending
and that I would never have that little girl I always
wanted. I was wrong. I did make it through somehow... |
| Lynn:
Lupus, Scleroderma, Sjögren's and Polymyositis
Overlap I am going to start to see the doctor
more often and take better care of myself... |
| Lynn
F: Raynaud's and Scleroderma So on November
11th my finger was amputated just above the top knuckle.
Unfortunately, an infection set in... |
| Lynn
S: Diffuse Scleroderma and Pulmonary Hypertension No
one believed me; I guess because I look healthy. I
would always hear, 'You are too young for this!' It
is hard for people to understand... |
| Lynne:
Morphea Scleroderma One day when I was seven
years old, my family and I went swimming in the local
river... |
| Lynsey:
Daughter of Patient with Scleroderma and Lupus My
mother has had all but four fingers amputated, all
of her toes on her left foot and her right leg up to
her knee has been amputated... |
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